We brought my mom to the hospital because we found her unable to make her coffee and hallucinating and had been up all night kinda tearing up her house. She was diagnosed with vascular dementia after finding she had many mini strokes, oddly enough she was fine the night before, of course we saw some signs of dementia like forgetfulness, and she was experiencing "dreams" which turned out to be hallucinations. She was evaluated in the hospital and we were told she needed 24/7 care and was nursing home material. After 5 weeks in the hospital we found her a nice memory care facility and took her there last week, we told her she needed to go to another hospital to get strong again. When she was in the hospital she was hallucinating, losing weight not sleeping and depressed. She has been in the memory care facility for a week and has perked up, she's sleeping, eating and bright eyed again, at first she thought she worked there :). The past few days she's been more lucid and asking to go home, when I tell her the Dr says she must stay longer to gain weight and regain her strength she gets upset. This now has me question weather I made a mistake putting her there! She still believes her dead relatives are alive but other then that she's almost herself. Since her decline was so quick we had no time to adjust to her having dementia and am unsure if this is normal, will she get worse again? I'm distraught tonight with guilt, any advice would be greatly appreciated.
Wait at least a month before deciding to take her out. She is unhappy about not being in her home, and needs time to adjust. In a month, you will get a better idea of her actual condition. She may decide that she is actually pretty happy to be somewhere safe with lots of people to talk to and activities to go to. Don't expect her to "decide" to stay. Probably her wish to go home will peter out. And sadly, her condition will probably eventually require NH care.
Feeling guilty is a sign that you are a good person. It is not proof that you made a mistake. Bless you.
The people on this memory unit know their jobs. Do stay on top of the meds because sometimes medications can cause dementia-like symptoms. But the hospitalization may have caused a permanent setback so even if your mom improves some, If she his well cared for, take time to recover and let her continue recovery. Keep giving her your perfect answer and move forward. Don't take her out unless you are convinced that is the right move, because changing environments can be confusing and trigger more symptoms. Use some time for yourself, too.
Take care,
Carol
Nervous system.
For a short time but she has good days & bad days.
She has gained some weight back that she lost not eating or remembering to eat.
In the home she has 3 meals a day & healthy snacks through out the day.They have activities for all who want to participate.
I too thought my sister was improving until I had her to my place over Christmas for 3 days
It is a 24/7 care.You think they are sleeping at night - & then who should be wandering & does not remember where she is or sme stranger is in her bed.
My sister is only 71 .People with dementia have stages of different personalities .
I am sure if you took your Mom home for 3-4 days you would find out for yourself that you can not take care of her.I think your Mom is where she needs to be
The staff are well trained & the nursing home has 24/7 care.
Just my opinion .Hope all works out for both your Mom & you.💕
I had that guilt -was I doing the right thing for my sister who has no family but me. I now know that I have.As time goes on your Mom will adjust .Don't feel that you should be there every day to see her .I visit once or twice a week or when there is a tea or once a month they have a party for whose birthday s that month.
Hope this info helps.
But older adults with dementia are especially prone to tip into delirium, even with relatively minor illnesses or medication side-effects. People generally get better once the physical stressor (illness or medication side-effect) is removed, but it can take months for them to fully recover and some never get back to the way they were before.
I have seen several older people with vascular dementia who can become extremely confused and then get much better. Generally I would say you should expect that she can easily tip into a spell of bad confusion again.
Whether or not she should remain in memory care partly depends on what your alternatives are, both financially and in terms of your ability to provide a living situation that minimizes the chance of developing delirium.
Also she has only been there for a week. People often get used to a new living situation given time, and in the long run she will probably need more and more supervision and support because that is the nature of dementia. Good luck!
My MIL has been in a Memory Care facility for 3 months now. We had to tell her that she was going there because the doctor said she needed therapy to walk better (she has some balance issues but otherwise ok, and physically "healthy" but FRAIL). In the 1st month she asked us each time we visited if we were taking her home. We gave our/your stock answer. The 2nd month she said she really liked it there/it was very nice, but she wanted to come home. We gave the stock answer - "Of course, and we want you to come home as soon as the doctor says you're ready."
This past month she stopped asking or even mentioning coming home about 2 out of 3 visits. Then a staff person put some St. Patrick's Day photos up on the FB page - there she was, smiling, laughing, havng fun with her new friends. She's very social and always was. At our house, she stayed in her room most of the time, slept 16-18 hours/day, came out for 2 meals, and watched endless TV when she wasn't sleeping. Did my husband have guilt when we moved her there? YES. Does he have any now? NO. We realize that where she is is BEST FOR HER. Of course we wish that she could have died at home, but that didn't happen, and now she's spending her days with her new friends, doing structured physical and mental activities, and SMILING MUCH MORE than she did when she was home with us.
Give her and yourself some time! As others have said - change is stressful. Moving her again now wuld be a mistake for all of you - but especially her.
Wishing you peace and an end to (your very normal) guilt! XO
Your mom sounds so much like my cousin when I placed her in Assisted Living. Her doctor ordered it due to her severe dementia, and then later she had to be moved to a Secure Memory Care Unit. Initially, she went to what she called Rehab, to help her with therapy and to rebuilt her strength. She forgot about that within a matter of months. Then she forgot that she she had a house. Very seldom will she say she wants to leave, but it's always to come to my house. She thinks she lives in the Memory Care unit. Her room is quite large and she has a roommate, but we call it her apt. She thinks she works there too.
I suspect your mom will grow to feel at home there, if she is treated well. I know that my loved one is in the right place. She says they are good to her and she seems to be content, although she does take Cymbalta and I think that helps her anxiety quite a bit.
When my cousin went to Memory Care, she seemed to be much more comfortable immediately. It was almost like being with other dementia residents gave her comfort.
No situation is perfect, but I allowed myself to enjoy her joy. Naturally, she didn't get well and eventually went downhill, but those two years of improvement were great.
It all goes back to individuals. Llamalover saw a bad reaction to morphine, which can happen, however, when my parents were given morphine under hospice care, they both reacted positively. With their pain under control, they were able to find some enjoyment during the last of their life's journey. I do know that some people will react negatively to nearly any powerful drug, however, so there should be options available. One size rarely fits all.
That's one of the great values of this forum. Input from many people with different experiences is priceless.
Take care all,
Carol