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Mother with Dementia and Parkinson's is waking at night between 1 and 3am and going to the living room, either sitting in her chair or she will turn the tv on. Should I make her go back to bed?
At the very least I would "dementia proof" the house; alarm the exits and disable the stove and any cooking appliances she might get into trouble with.
Magnesium glycinate, 400 mg really helped with sleep. We tried varying dosing times.
For a number of years we gave 200 mg at 4:00 pm and 200 mg at 6:00 pm with dinner. We followed this regimen when sundowning was a problem. The 4:00 pm dose helped with sundowning.
When sundowning was no longer a problem we gave 400 mg at 6:00 pm with dinner and Mom went to bed at 8:00 pm. She generally did not get up at night, once and awhile she did.
Karrip: Perhaps you could try giving her melatonin so that she AND you get restorative sleep. Her waking up could be a real problem if she starts wandering. Ensure that she cannot access the stove and also alarm the doors to the outside.
I did. Mom would get up and start dressing. I had her look out the window and told her "look, its still dark out, not time to get out of bed." Then I would put her back to bed and she would sleep till 8.
It doesn't sound like she is causing you or herself any problem. If she is physiucally safe going into the living room, Idon't think I would worry about it. when we cannot sleep ourselves we are often told to "get up and do someting else" rather than lie in bed fretting about being awake.
Mom would sometimes put on her shoes and get back into bed. Dad (who slept with her) was not concerned nor were my sister or I concerned.
The daytime caregivers wanted us to hire overnight caregivers but Dad and my sister and I felt like Mom was safe enough. She was not one to go outside or into the kitchen. She would however go into her closet, put her shoes on, and get back into bed.
It did not bother Dad who was responsible for Mom so Dad kept sleeping.
I'd concentrate on your sleep and make sure you have good locks on the doors. Also, you can try the magnesium mentioned above. That really helped.
My mum would get up to use the toilet in the middle of the night- they have to walk through the living room to get to the bathroom - then forget to go back to bed. Her husband would find her, later, shivering in her armchair.
He put a big cardboard box on her chair with a note in large writing, telling Mum to go back to bed. That worked. He'd tried it before without the note, but she just moved the box, or sat awkwardly on the pile of blankets (which was his first attempt).
(They sleep in separate beds in the same room. He always says that he's aware if Mum has an epileptic fit in the night, even though Mum has small ones where her muscles clench and just her hand shakes wildly, yet he doesn't hear her getting out of bed. Hmmm... I think that's slightly unlikely.)
Father with LBD, night wanders, has for years. Did safety precautions around the house. But now as he wanders, he gets lost in the house (just has three “rooms” - living room/kitchen, bedroom, bathroom) and falls multiple times. Doctor says the patient has a “right” to fall but then says we aren’t doing enough to keep him safe. now we use alarm/magnet clip on him just to alert us if he wakes so we can watch him and Hospice wants to put a bed pressure pad. Will not necessarily “stop” falls but will alert us that he is on the move so we can escort him, use gate belt, give directions back to bed, etc.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
I might think about a camera as well to make sure she isn’t up wandering. If she starts that then you have a different worry.
Sometimes it takes a few days to get our sleep back on track after a disturbance.
Hopefully she isn’t in pain.
We tried varying dosing times.
For a number of years we gave 200 mg at 4:00 pm and 200 mg at 6:00 pm with dinner.
We followed this regimen when sundowning was a problem. The 4:00 pm dose helped with sundowning.
When sundowning was no longer a problem we gave 400 mg at 6:00 pm with dinner and Mom went to bed at 8:00 pm. She generally did not get up at night, once and awhile she did.
Mom would sometimes put on her shoes and get back into bed. Dad (who slept with her) was not concerned nor were my sister or I concerned.
The daytime caregivers wanted us to hire overnight caregivers but Dad and my sister and I felt like Mom was safe enough. She was not one to go outside or into the kitchen. She would however go into her closet, put her shoes on, and get back into bed.
It did not bother Dad who was responsible for Mom so Dad kept sleeping.
I'd concentrate on your sleep and make sure you have good locks on the doors. Also, you can try the magnesium mentioned above. That really helped.
He put a big cardboard box on her chair with a note in large writing, telling Mum to go back to bed. That worked. He'd tried it before without the note, but she just moved the box, or sat awkwardly on the pile of blankets (which was his first attempt).
(They sleep in separate beds in the same room. He always says that he's aware if Mum has an epileptic fit in the night, even though Mum has small ones where her muscles clench and just her hand shakes wildly, yet he doesn't hear her getting out of bed. Hmmm... I think that's slightly unlikely.)
Doctor says the patient has a “right” to fall but then says we aren’t doing enough to keep him safe.
now we use alarm/magnet clip on him just to alert us if he wakes so we can watch him and Hospice wants to put a bed pressure pad.
Will not necessarily “stop” falls but will alert us that he is on the move so we can escort him, use gate belt, give directions back to bed, etc.
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