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By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid. We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour. APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
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V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
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Mostly Independent
Your loved one may not require home care or assisted living services at this time. However, continue to monitor their condition for changes and consider occasional in-home care services for help as needed.
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My dad has Lewy Body dementia and Parkinson's. His caregiver is my mom but he does not recognize her and does not trust her. He hides important mail and is not nice to her. She is having to hide EVERYTHING. What can we do?
My husband also has Parkinson's with dementia or LBD with partial success with seroquel or quetiapine. His neurologist also prescribed Nuplazid which is made especially for Parkinson's patients with delusions or hallucinations. Both together are extremely helpful. I also read that Capgras is visual but not auditory, so if you speak before he sees you it can help him make the connection.
Other than his spouse wearing a cute pin that says "wife" (not meant to be acrimonious), evenso he may not recognize that. He may require a different home.
This is difficult. With LBD the person can become violent and this might be the time that you may have to consider placing your Dad. This is a big step and I am sure that your Mom will not like the idea but it will get more and more difficult for her.
A few ideas for you though. My Husband loved going to get the mail. I would go out first and grab the "important" stuff and leave the junk mail. That way if something was lost it was no big deal. I would also go out with a few pieces of junk mail just in case there was no mail I would put the mail in for him to get out and bring in. I also got a small safe to keep important papers in, I also had to hide the car keys as he took the car of 2 occasions. Lucky for me some of these phases did not last long but you always have to stay 3 steps ahead. I do hope your Mom has found a good support group to attend. I can not tell you the information, support and guidance that a support group give. And you find that you are able to give as much as you get since there are always new people coming into a group and they are where you were a few months ago so you can pass on what you have learned. Not to mention the socialization that is so important.
My husband has Parkinson's and Parkinson's Dementia, which is very similar to LBD. He used to think that I was one of his children and kept asking them (me) "what did you do with Pam?" And I was standing in front of him the whole time. The longer it went on, the harder it was to "reset" his mind so he would see me again. His neurologist put him on Aricept. What a life saver! After 6 weeks to the day that he started taking it the hallucinations stopped! That was three years ago and still no recurrence. I have heard of others having similar experiences with it. If your Dad is not on it already, ask your doctor about it. My husband also takes 1 1/2 tablets of Seroquel at night, an anti-psychotic medication. That is a very low dose but enough that it has stopped him from acting out "dreams" at night and keeps us both safe.
Blessings to you. Hope you can find the right answer.
Many of us pay for caregivers in our home from our savings. When the savings are gone, Medicaid (not Medicare) kicks in. If Mom and Dad have more than a few thousands in savings, it makes sense to get a Certified Elder Care Attorney involved to protect assets for Mom, to the extent possible. And yes, I feel your pain in dealing with your situation. You will find more info on the financial aspect of this horrible disease at alzconnected.org/discussion.aspx?g=topics&f=151
Thank you for your responses. How does a caregiver cope? Do you have help? How is this help paid for? This situation has brought my family to our knees and reading your responses is comforting.
This delusion is common enough to have a name -- Capgras syndrome. One study found about 17% of persons with LBD experienced it. Now that you have its name you can look it up on the internet and learn more about it.
My DH has LBD as well. It's a terrible disease. Work with the doc to adjust his medications, including anti-psychotics. If it doesn't improve, he may have to move to a memory care facility in order to protect your Mom.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
With LBD the person can become violent and this might be the time that you may have to consider placing your Dad.
This is a big step and I am sure that your Mom will not like the idea but it will get more and more difficult for her.
A few ideas for you though.
My Husband loved going to get the mail. I would go out first and grab the "important" stuff and leave the junk mail. That way if something was lost it was no big deal. I would also go out with a few pieces of junk mail just in case there was no mail I would put the mail in for him to get out and bring in.
I also got a small safe to keep important papers in, I also had to hide the car keys as he took the car of 2 occasions.
Lucky for me some of these phases did not last long but you always have to stay 3 steps ahead.
I do hope your Mom has found a good support group to attend. I can not tell you the information, support and guidance that a support group give. And you find that you are able to give as much as you get since there are always new people coming into a group and they are where you were a few months ago so you can pass on what you have learned. Not to mention the socialization that is so important.
Blessings to you. Hope you can find the right answer.