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In the beginning I was told it was Psychiatric. Neurologist’s and Dementia specialists basically said there was nothing they could do. I have support from his PA and psychologist, but that’s about it. Friends have left, but lucky to have had my brother and Sister in law move in with their now 5yr old a year ago. That little girl keeps me on solid footing, however my husband forgets who she is every morning.
Today he cried at the PA’s as you could see he didn’t remember her. Morning routine is him staring at the erase board coming to terms with not working/driving and the disease he has. It helps him and me to keep that reminder to read. Took me awhile to get the right combination of meds as he has catatonic seizures with FTD and Parkinson’s.
He is the strongest men I have ever met, as I don’t think I have the tools needed to cope if it was me. He has good and bad days, but overall an incredible fighter. Tough childhood along with life challenges gave him the fight I believe.
Everything that happens in life is for a reason, took care of my Mom with Dementia for 4yrs before she crossed over. It gave me the patience I needed and he talks to her as if she is guiding him. Mom was in a facility, but I was there 7 days a week. I saw the decline as I had to move her with the progression to accommodate. Keeping my husband in a familiar surroundings with family has prolonged his disease progression. That one year “they” gave him to live has brought us to 5 yrs and hopefully another 5. One day at a time is all we have along with patience and love.

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Not in your shoes, and offering no advice. Just chiming in to say your husband is blessed to have you in his corner and I wish you both peace
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