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First off some background- my Mom is on hospice, for Leiomyosarcoma and I think she is getting Demetia or Alzheimer’s, I’m disabled due to my Autism but currently don’t get SSI so we are surviving on her Social Security. We need to sell the house cause we can’t live in it and pay all the bills. I want to move us into an rv and this is also what my Mom wants because she wants me to have a place to live when she passes. The hospice social worker,who wasn’t happy about our plan mentioned she that she might not qualify for Medicaid if I do this. Now from reading about Medicaid it seems like we are in a no win situation. If I sell and she has to go in a facility she won’t be eligible but if I don’t and she has to go to one I’ll still have to sell the house as I won’t be able to afford the bills. Also will the social worker really report me to APS if I move us into an rv? I’ve been told that she possibly would and don’t understand why? She will have a roof over her head, food,heat. Yes my Mom is confused a lot but she is still able to understand and makes decisions

You mention that March is when the mortgage is in jeopardy. Do you expect that you will have cash in hand with a sold house within less than a month? Plus your disability wont go through for 6 months or more. She will still need a lawyer when she sells, and if the house sells that easily. You mention that you can find free land once you get an RV, but how do you both expect to find established medical care if you move around within the state of GA?
As mom gets worse, her care might be beyond what you can do. Mom might still need Medicaid. If she passes on Medicaid, the RV will be gone, her SS disappears and your SSDI will not cover enough.

You are in a tough situation
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CMccord84 Feb 17, 2025
I don’t plan to move the Rv around while she is alive. I will get an exemption from Medicaid to not take the Rv and they reallly can’t if I’m living in it
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CM, I would encourage you to do good research on RVs.

From the sounds of it you are looking at getting what is called a Class A or Class C, both have motors and are considered motor vehicles, which means insurance and registration, speaking from personal experience, very expensive to go this route. Not to mention you have to, have to maintain the engine or you and your home can be stranded on the side of a road and you will be without a place to live while it is being repaired. I found having to buckle my house up to run to the grocery store a buttpain. These are very expensive rigs new, so you will be buying used and that means you don't know the history of care, breakdowns, problems etc.

You will be financially better off to look into a travel trailer and a truck that can tow it. Cheaper in every imaginable way and you are not moving house for errands and such, plus, you have a home in the event your motor vehicle needs repair.

If you can't afford the vehicle to tow for a while, there are services that will move them for you. You aren't mobile with that option but, you are not stuck either.

I would encourage you to check into places to park, ie RV parks and some trailer parks allow "rvs". These can be very expensive and many make you pay your own power bill for long term stays, which means more then a few nights, at higher rates.

My mom chose this route and she paid more for her monthly space rent then she did for all of her house bills combined, then she still had all of her house bills, ie electric, cable, water, etc. It was not a financially smart decision and cost her more monthly then she had considered.

So medicaid is only a small consideration in this choice, imo.
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CMccord84 Feb 17, 2025
I can’t have a towable trailer because SSI rules don’t allow it so I’m going with class C as they are easier to drive from what I’ve read. There are Rv parks here that are cheap that include water, power hookup after my Mom passes I will be living off grid, what is known as boondocking with solar. I have reasearched this extensively and this is my best option, there are plenty of free places to camp just got to know where to look. I know people don’t think I’ve thought this thru or read up on rv life but I have for years because I knew at some point this would be my future as a disabled adult in the United States.
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CM, it is really important that you realize that IF the home is currently 100% titled in your moms name, if she sold it, 100% of the $ has to be spent by her for her own needs. She can buy another home, she can rent an apt, she can buy an RV, she can buy a car. But whatever she does with the $ has to only be in her name. If she uses any of that house sale $ and buys something which is titled in her & your name, she is essentially gifting you an asset. It will cause her to be ineligible for LTC Medicaid for a period of time based on the value of the asset she transferred to your name. It’s a transfer (of assets) penalty.

Also if she goes into a NH and onto LTC Medicaid to pay for the NH, it has a required attempt to recover all cost paid by the program after she dies from any assets of her Estate. A home or a car would be an asset. It’s done via MERP Medicaid Estate Recovery Program. There are several exemptions and exclusions to recovery. If you did 2+ years of full time caregiving for her, that kept her from entering a NH, that usually is a valid exclusion to recovery. You file for the exemption either before she files an application for LTC Medicaid or done after she dies. It’s is totally dependent on her State as to how this is done. But it allows you - if you are the only heir - to have recovery quashed.

and as a final item, LTC Medicaid has exempt asset maximums. LTC Medicaid allows 1 home & 1 car retained as an exempt asset IF they are under the maximum value for the asset. The $ amount varies by State. For homes tends to be 550K - 750K value range. For autos, it is lower; it could be 25k, could be 35K. Why I’m mentioning this is if mom buys an RV, it will be important to know precisely if her State LTC Medicaid considers an RV to be a “home” or an ”auto”. RVs are not inexpensive. If it’s a 100K RV that she buys and her State considers an RV to fall into “auto” category which has an asset maximum of 35K, she will be deemed over-resourced and will be ineligible.

There are loads of lil details that have to be taken into account for LTC Medicaid eligibility. It’s why so often you hear that elders are often best off having an elder law atty experienced in LTC Medicaid applications doing the filing.
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CMccord84 Feb 16, 2025
Honestly if we do Medicaid, which I will try to find something Medicare will pay for because Medicaid just seems to dang complicated but if we do they can have her car I don’t care because if I get SSI I can’t have a car and an rv or else they won’t give me SSI. But I have researched and Medicare will pay for hospice house/care facilities so I’m going to try and go that route because I can’t have Medicaid come and take stuff away from me and leave me with nothing because there is no guarantee I will get SSI this year, I may lose and have to start the process over so I need enough money to last a couple years.
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CM, I read your responses below. You say a realtor has a buyer for your mother's house? How much equity does she have? How much will she receive in cash from the sale of the house after the mortgage is paid off, the closing costs, and the realtor's commission?

It seems that instead of buying the RV, she could save that money and, with frugal monthly distributions, she could combine that with her Social Security to pay to rent a smaller place for the two of you to live together while you wait for your disability payments to be approved. Does the math work for that plan?
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CMccord84 Feb 16, 2025
After we pay everything off, car, loans, etc we should be left with around $50k. And I don’t know, rent is very high here especially with a pet, we have a cat plus once she passes I don’t want to stay in the town we live in because it will be to painful for me plus I would like to be able to get services for my disability to try and be a better person and that means I need to move as there are no services where I live for adults with Autism
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CM, just read your updated post. The priority needs to be the $500-$700 paid to the mortgage company & asap. You have to - have to - find $ somewhere (your brother, perhaps a faith based charity, like St Vincent de Paul, Jewish Family services & fwiw neither of these require you to be of that faith) to reset the looming foreclosure.

if I’m not mistaken, if a home where in-home hospice is providing services to has received a Foreclosure Notice (due to nonpayment of a mortgage), the hospice has to Notify APS for a facilities placement consultation. If APS gets involved, and the individual, or their family members living in the home, does not seem to have any sort of feasible & do-able plan to solve the foreclosure, then APS can ask the court for an emergency ward of the State status to be placed on the elder. APS could do this for your mom. A temporary or interim guardian is done and they basically take over the decision making for moms care and living situation.

Stuff like this snowballs and fast. You don’t want this to happen if at all possible. Find $ in some way to reset the foreclosure. Then deal with the SW concerns. Every day do something to try to deal with this. Even if it’s small steps…. Like tomorrow a federal Holiday you clear up and out any ot poke expired medications; then Tuesday you speak with yiur brother, etc.
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CMccord84 Feb 16, 2025
I never said the home is in foreclosure. I only called the mortage company because the social worker told me to see if they could offer help but they said no so I’m making te mortage payments. The $600-700 is what we would be short on monthly bills because my Mom only receives $1087 Social Security every month and our monthly bills around around $1600-1700 a month.
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So CM, you have actually filed for SSDI, correct? And you have an attorney dealing with this for you and there is a hearing date, correct?
If so the hospice SW is concerned about your ability to be the required “in the home” caregiver for all the time when someone from the hospice agency is not there. Hospice is a Medicare paid benefit and the hospice agency is getting a set amount of $ each month to provide for their services. But in home hospice has a required sharing of responsibility to be in place for them to be able to be paid by Medicare. There has to be a capable adult or adults in the home who can absolutely be there all the time when hospice is not. Your being “disabled” is a red flag.

I have a suggestion, if I were you I would tell the SW that mom and you as moms POA are looking to find a caregiver to come over to do some caregiving for mom. So that it’s 2 persons, you and this new caregiver. That you are looking into this both on possibly of 1. using some of moms $ for this AND 2. looking into mom applying for a Community Based Medicaid program for IHHS in-home healthcare services eligibility for IhHS to send over a caregiver. AND 3. That you are going to speak with Medciaid about getting an assessment done on mom to see how many hours she might could qualify for.

i know there isn’t the $ for mom to pay for this, THIS IS NOT THE POINT!!! this is all about lessening the valid concerns the hospice SW has on your capabilities as you have filed for disability. The storyline is… You & mom are looking into this and it takes time…… yada yada. If you want to add onto this, you could say that mom is looking into possibly doing an HELOC to be able to have a bit more $. All this is buying you time. It is putting a band aid on the situation. It does NOT mean mom is hiring a caregiver, it does not mean mom is taking out a HELOC…… it means y’all all looking into ways to provide for extra $ and help. That SW has to do her own reporting and if she has concerns well she has to put that down. It could be that last couple of months when she did her visit, she saw a house unkept, or medication askew, or things didn’t look very freshy fresh and you seemed to be struggling due to your own disability. Telling SW you are looking into all this shows you realize there are valid concerns and you are dealing with it. Doing this should give you at least 2 months off the SW radar on moms case being a “problem”.

Personally I would file for mom to get onto a Community based Medicaid In-home program. There will be one. It could be weeks before availability but it shows action on your & moms part to do something. Also I’d drop ever speaking on the idea of moving her into an RV and selling the home. It’s flat too disruptive. What if it takes months to sell it? What if it can’t sell at Fair Market Value which Medicaid expects it to be? If you are disabled, how is all the stuff going to be packed and moved.? I bet the SW views the “move to an RV” as crazy talk. Instead you say that you have reevaluated your moms thoughts on moving to an RV and that it’s not feasible, that you are planning on staying in moms home. If you want to put icing on this cake…. Plant a couple of flowers or bulbs in the front yard as it implies you are taking care of the house and plan a future there. Also take a hard look as to how the house “presents”, so if it’s dirty or cluttered please pls pls try to clean and jettison crap. Stuff like this makes a difference as to the report the hospice SW has to do. A SW is a mandated reprot so has to let authorities know if there are concerns they see.

Not to be harsh, but what this all does is buy you time to hopefully get SSDI so you can afford the home once mom dies & her SS $ keeping the household afloat is gone. It’s a band aid on a problem, not a solution. Keep communication open with the atty so that you are very prepared for that hearing and how to answer any ? that could be asked. Good luck on your hearing.
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CMccord84 Feb 16, 2025
So wait, I can be reported for unkempt house? Guess I’m screwed then because our house is cluttered and messy because I don’t have the energy to deal with it with my Autism, ADHD, and Depression while caring for my Mom. As for the house we’ve both talked to a realtor, we started talking with one at the end of last year and he has a buyer lined up. The only reason we hadn’t sold the house yet is the guy who wants it went out of the country for a while. As for packing it up, I found a company that would haul off everything we don’t want. And there is no way to stay in the house once she’s gone SSI only pays $967 a month. An rv is the only choice I have and my Mom knows it which is why she wants to do it so she knows I won’t be on the streets.
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Yes, selling her house and using the money for an RV will disqualify your mother from Medicaid because it is gifting -- she is giving you the RV to live in after she passes away. That may not seem fair because your intentions are good but it is the reality.

Check into getting SNAP benefits (food stamps). Also you can probably get Meals on Wheels, for your mother and possibly also for yourself.

Is your mother's house paid off? Is it in her name? Does she have a will?

I'm sorry you're going through these challenges.
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CMccord84 Feb 16, 2025
No will but according to ga law if both my brother and I agree to stuff there is no need plus my Mom doesn’t have anything except stuff my brother doesn’t want and my Mom and I have a joint checking account. She still owes on the house and it’s in her name. So will I just have to make it work in an rv instead of placing her in a more comfortable place? Because we cannot stay in our home past the middle of March, we will be around $600-700 short. The mortage company made it clear they want their money and even if we got help on utilities we will still be short
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To be on Hospice your Mom has to be dying. I can see why the hospice SW thinks moving now would be a bad idea. I think what she could do for you is help you apply for Supplimental income so you have money coming in. Then apply for Social Security Disability. You and Mom should be able to get Food stamps. If this SW will not help you with this, go to your Social Services and speak to someone there.

If Mom passes, you lose her Social Security. If she ends up on Medicaid because she is placed in a Nursing Home, you lose her SS because its needed to help pay for her care.

What you need is an Elder Lawyer to help you navigate Medicaid, etc. But I don't think you can afford one. Call Office of Aging to see if there are any Lawyers that will help you for free.
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CMccord84 Feb 16, 2025
I have applied for Disability, I’m waiting to get an appointment before a judge, which according to my lawyer will happen sometime this year
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I am so glad you have this social worker who has been honest to warn you of the problems here.
First of all, now that you have the SW, do ask for referral on your own application for SSI benefits. I watched yesterday an excellent film on applying for SSI, and how to do it for mental deficits severe enough to prevent your working. For someone as able to do access and understand the system, it is very doable to get on SSI.
This was a 17 minute film on the exact process. Was on bing videos, their search engine, and I looked under "applying for SSI for mental disability." I hope you can access it, because my copy/pasting of it doesn't seem to work.
This application and approval will help you not only NOW but in future when you don't have mom.

The SW may report you if you make attempt to sell mom's home. And this is why. She may feel mom no longer has the mental capacity to make her own decision, and she may feel that you do not have this capacity either. This may lead her to attempt to make your mom a ward of the state. But I think she will be honest enough to TELL you, if this is the case, and I would discuss it with her.

It seems to me, simply from your note to us here, that you do have a good understand of options for yours and mom's future and for both your protection. I would consider consulting an attorney. I don't know if you are mom's POA or capable of being so or even if mom is currently able to designate you as POA. I did work with a realtor when my brother wished to sell his last place, who was qualified in working with special needs people.

Continue to honestly explore your options. You seem to me capable of doing so. USE that Social Worker now to explore how best to get help and options. I think an elder law attorney who would come to speak with you in the home would be a good start. If you have solid friends or other family members enlist them in helping you as well. It's important that this be done legally, and well done.
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CMccord84 Feb 16, 2025
I have applied for disability currently waiting to see a judge. I do have power of attorney but I live with my Mom 24/7 and I feel she is capable of making decisions. The sw only sees us once a month and nurses once a week,yes she is confused sometimes but my Mom’s mind is still sharp enough to make decisions. I have made sure to ask her several times what she wants because I have always and will always ask her what she wants and she has made it very clear and i have even video it because I don’t want people to think I forcing her. Unfortunately we have no friends or family to help us.
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That is tricky. Medicaid looks closely at all assets because it wants to recoup money back. They look at all transactions. They can find money you don't even know you have. Maybe seek advice from an attorney in the field.
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CMccord84 Feb 16, 2025
Yeah and no lawyers have been helpful cause they have never had a case like this, where someone is completely dependent on someone but is legally not disabled yet according to the government. I have talked to so many lawyers
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