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My mother has Alzheimer’s and is losing weight and getting weak because she only will eat a few bites a day. We have been getting her to drink some fortified shakes, but that is not enough. She is still home where she wants to be, but for the last month, spends most of her days in bed and occasionally will sit up in a chair. Most times she refuses to bathe even with help and does not want to brush her teeth. I have tried offering her favorite sweets but she doesn’t want those either. Don’t know what to do. My son lives with her and I go back and forth.

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There can be a lot of things going on here.
All of them you probably don't want to hear.
As a person declines their need for calories lessens. They are not as active. The body needs a few calories to keep the major organs functioning, brain, heart, lungs, kidneys. These will also stop functioning.
To give mom food or fluid that her body can not use can cause more problems. So you are right not to try to force her to eat or drink. Offer but never force.
Your mom would probably qualify for Hospice and the Hospice Nurse can give you information and help you through this difficult time.

Another thing that often happens with dementia is a person "forgets" how to swallow. So food given may remain in the mouth or throat. This can lead to aspiration of the food or liquid that leads to Aspiration Pneumonia.

She is not feeling hunger or thirst like you or I do.
The body "prepares" to die. By stopping eating and drinking she/her body is preparing.

Please watch a few videos on this subject by Hospice Nurse Julie. You can find her on You Tube and on Facebook. She has some very informative videos.
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Reply to Grandma1954
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Suzy23 Apr 8, 2025
Agree 100%
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Mom appears to be in the final stages of dementia. If you continue to push her to do what YOU want her to do, you'll become quite frustrated. Their bodies quit, their minds quit, and that's the course of the disease. I'm so sorry.

My husband will soon be at the same stage. We have to accept what is happening with peace in our hearts because we have no other reasonable choice.
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Reply to Fawnby
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Get hospice on board, it's time. You cannot and should not try to force a tired old person with advanced Alzheimer's to get out of bed, eat, or do anything they don't want to do.

Best of luck.
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Reply to lealonnie1
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My feeling is, there is nothing more you can or should do other than hospice which is compassionate. Now, you can just be with her. Silently, or maybe tell her happy memories, or thank her for all she did for you, and forgive her for anything too. Play her some of her favorite songs or read her something that means a lot to her. Make sure she’s as comfortable as possible. Tell her you will take care of anything she might be worrying about and that it’s ok for her to rest and to go.

My dad had frontotemporal dementia (not Alzheimer’s) but he went through the exact same thing that you are describing. He ate less and less his last few years and the last six months, all he consumed was one small scoop of vanilla ice cream and maybe 3-4 ounces of orange juice per day. The dementia caused him swallowing problems and he just didn’t like any other foods, protein shakes, etc. He was skeletally thin and too weak to walk much at all. He went into home hospice four months before he died. The last several days of his life, he barely consumed anything including water.

He also did not want to bathe or brush his teeth or change his clothes. The hospice people got him to cooperate a few times on cleaning but it was rare.

Hospice is really helpful. Best wishes
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Reply to Suzy23
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Have Hospice come in 3 times a week, that is what we did for my mother, it was a great help to us.

She just died, also did not eat or drink she was in transition; she was ready to go at age 100.

Hospice nurses will help you understand what she is going through and what will happen.

If you do not want this to happen in her home, she can be placed in Hospice, talk to her doctor about this.

You will not stop the inevitable, so now is the time to prepare yourself.

Sending support your way.
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97yroldmom Apr 6, 2025
MeDolly
Sorry for the loss of your mom.
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You can call in hospice and they will have a nurse come once a week to start to check on her and aides that will come bathe your mother at least twice a week, even if she's in bed.
They will supply all needed equipment, supplies, and medications, along with access to a volunteer, their chaplain and social worker all covered 100% under your mothers Medicare.
It sounds like your mother life is winding down and having Alzheimer's is a death sentence anyway, so call hospice so they can better direct you to make sure that your mother is kept comfortable and pain free, so she can die in peace.
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Reply to funkygrandma59
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I am curious why you are so anxious to prolong her life now, against her own wishes, and given her current condition? Can you speak with me a little about this?
Can you tell us how old Mom is, and how long she has had dementia?
Have you educated yourself to the fact that eating less and sleeping more is the norm in middle-late and late stages of dementia?
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Reply to AlvaDeer
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What does her neurologist and/or primary care provider say? You should be able to call them or send him/her/them a message on the patient portal. They might also be able to arrange a virtual telehealth visit. You can set this up and bring her a tablet or laptop computer at the appropriate time for the visit. It certainly sounds like she needs long-term care.
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Reply to swmckeown76
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I have given up on my mom. I ask her at dinner (lunch is premade in the morning) are you eating or not. Most of the time I get the line I HATE: Do t make me a lot 🤬

So last night handed her a cup of cottage cheese, a spoon, and walked out.

if she won’t do anything to help herself, I dont care anymore.

Doctor said her not eating or drinking a lot is part of the “process”
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Reply to Momlittr
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swmckeown76 Apr 5, 2025
Sometimes it is; sometimes it isn't. Does she have dental issues? Does she have swallowing issues? Does she have a form of dementia? Is she depressed? What does the doctor say about these issues? A speech therapist can do a swallowing test.
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