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Who are you caring for?
Which best describes their mobility?
How well are they maintaining their hygiene?
How are they managing their medications?
Does their living environment pose any safety concerns?
Fall risks, spoiled food, or other threats to wellbeing
Are they experiencing any memory loss?
Which best describes your loved one's social life?
Acknowledgment of Disclosures and Authorization
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid. We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour. APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment. You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
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Mostly Independent
Your loved one may not require home care or assisted living services at this time. However, continue to monitor their condition for changes and consider occasional in-home care services for help as needed.
Remember, this assessment is not a substitute for professional advice.
Share a few details and we will match you to trusted home care in your area:
Your feelings are normal; everyone would like to escape from a person who is angry or lashing out, even if you realize intellectually that it's the disease that causing the outbursts. Do you have any assistance at all? Consider some in-home caregiving assistance if you are able to pay for it. Perhaps you might be eligible for Medicaid services? It's impossible for one person to see to the needs of a person with this type of dementia, especially as it advances. You may need to speak with an elder care lawyer. Or perhaps you can ask your primary care physician for a recommendation for a social worker, who might then be able to recommend resources for assistance.
Hi, this is absolutely normal, there is another girl on here , husband I think was diagnosed with Lewy body, but I could be wrong. She has had to put her husband in a facility, I'm hoping she sees this and adds to what everyone has said.
Lewy body is hard, her husband actually almost really hurt her, I'm not sure the whole story but she had to call the neighbor to snap him out of it, it was a very dangerous situation, so please be careful.
Let us know more about your self , and what is actually going on.
There are Lewy Body dementia patients in my husband's memory care unit. They are well cared for by a staff of caregivers 24/7. If you're attempting to take care of him yourself, there is no way that you can provide the quality of care that he'd get in a facility. You're attempting to do the work of half a dozen caregivers, at least.
Time to place him. I'm sorry. You are normal. You haven't failed at anything. Some diseases present terrible caregiving dilemmas, and Lewy Body is one of them.
I'm afraid that we don't know you well enough to know how "normal" you are, but your response is certain one of the basic human responses of "fight or flight". Can you tell us a bit more about your situation, how long you've been dealing with it, and what your goals are for a future you can live with? You don't have a real question at the moment it seems, but we surely acknowledge the desperation of your statement.
We are human beings with human limitations. There isn't a ONE OF US that hasn't experienced the feeling of wanting to run away, to hide, to pull the covers over our head and hide. My heart goes out to you.
You are overwhelmed by it all and because you say in your profile that you suffer from anxiety disorders, of course you would want to hide from him. BUT, in all reality with all that your husband is going through with his dementia, he really does need someone to be present with him to make sure that he's kept safe and being well taken care of. And if that person can't be you then it's time to either hire full-time help for you both or place him in a memory care facility, where he will be taken care of 24/7 and where you can get back to just being his loving wife and advocate and not his overwhelmed, and fear stricken caregiver. The only upside here is that Lewy Body dementia is one of the most aggressive dementias with a life expectancy of just 5-7 years, so hopefully this road you're on won't last much longer. In the meantime though it's important that you now do what is best for both you and your husband. And I wish you well in deciding just what that is.
Of course you’re normal, it’s the circumstances you’re living in that aren’t normal. Your profile includes a long list of issues you’re dealing with for your husband, simply too much for any one person to handle. I hope you’ll get some help and not continue to try handling all this on your own. Call your local Council on Aging to start and ask about services in your area. Consider if it’s time for husband to move into full time care. Guard your health, for you will not get it back.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
Do you have any assistance at all? Consider some in-home caregiving assistance if you are able to pay for it. Perhaps you might be eligible for Medicaid services? It's impossible for one person to see to the needs of a person with this type of dementia, especially as it advances. You may need to speak with an elder care lawyer. Or perhaps you can ask your primary care physician for a recommendation for a social worker, who might then be able to recommend resources for assistance.
Lewy body is hard, her husband actually almost really hurt her, I'm not sure the whole story but she had to call the neighbor to snap him out of it, it was a very dangerous situation, so please be careful.
Let us know more about your self , and what is actually going on.
Welcome to our forum.
Time to place him. I'm sorry. You are normal. You haven't failed at anything. Some diseases present terrible caregiving dilemmas, and Lewy Body is one of them.
We are human beings with human limitations. There isn't a ONE OF US that hasn't experienced the feeling of wanting to run away, to hide, to pull the covers over our head and hide.
My heart goes out to you.
BUT, in all reality with all that your husband is going through with his dementia, he really does need someone to be present with him to make sure that he's kept safe and being well taken care of.
And if that person can't be you then it's time to either hire full-time help for you both or place him in a memory care facility, where he will be taken care of 24/7 and where you can get back to just being his loving wife and advocate and not his overwhelmed, and fear stricken caregiver.
The only upside here is that Lewy Body dementia is one of the most aggressive dementias with a life expectancy of just 5-7 years, so hopefully this road you're on won't last much longer.
In the meantime though it's important that you now do what is best for both you and your husband. And I wish you well in deciding just what that is.