I have been caregiver for my mother, age 88 for plus six years. All doctor appointments, medical decisions, setting up of services (med alert device), etc. Mom will not listen and take advice from PT, RNs and refuses to use the walker consistently. (I am 64, retired. One grown responsible son, 500 miles away. Husband, age 66, retired.)
In the past, I tried to make mom “happy,” took her on outings, did housework, laundry, yard work. Mom also lived with me and husband (his offer) for 22 months. This was a complete disaster despite all my efforts. Currently, mom is back in her house. My 69 yr old brother, Kris lives with her. (He is divorced. Must be at work at 6am, so I arrive at house at 5am) He stuffs his feelings, won’t make the simplest decision re: mom, and refuses to retire. Younger brother and s-in-l will not help at all. Mom resists 99% of my efforts despite me calmly (most of the time) trying to explain I love her, etc. and don’t want her falling again.
When there is an urgent type situation (ex. Mom falling at 10:45 pm, brother calling and saying he doesn’t know what to do, me having to tell him twice to call 911) I am expected to take over all matters involved.
I have mentioned recently that it is getting time to either put mom in a nursing home (she is becoming weaker and unsteady on feet) or have a home health aide come 2-3 times per week, free through her insurance up to 35 hr/wk. I would come 2 days. (BTW: Due to the coronavirus a nursing home is out of the question right now.) Of course this is met with resistance from mom and older brother, Kris. I have tried to be honest in my feelings and stress level. This is something “new” as we were taught to stuff our thoughts and feelings. Kris doesn’t face problems, he ignores them. Mom doesn’t want a stranger in the house.
I realize I have to use tough love. Plus, I know I am the only one who can solve the problem. (No one else will make a decision.). I have told Kris perhaps he should put a lock on his area downstairs so the aide couldn’t go in there. (He trusts few people.). I suggested he put a lock on one of mom’s upstairs bedrooms and put valuables (there aren’t any) in there. He has done neither. I am very angry at mom (for putting me in this situation and being so uncooperative), Kris (his lack of action, etc.) and younger brother (for refusing to be involved). Before 3/23/20, I was coming twice/week to get mom out and help. Since 3/23, her latest fall (broke dominant wrist) I have been here too much: M-F, 5am - 4:30 pm due to Kris always having some errand to run after work. I am burnt out already.
Suggestions please.
Nancy
I would have 2 conversations - one with the brother and one with the mother
I would not give them a choice - I would say- this is happening because I am not going to do this at all otherwise - I would suggest that before you get all bent out of shape about it that you see how it goes first. ( I would do home health care first).
You teach people how to treat you and this appears to be a boundary issue to me- you enforce your boundaries and they have no choice
Even though moving your mom is out of the question right now, you can still start your research, find a social worker to help you (sounds like you will need one - I did), talk to a lawyer about what you can legally do if she won’t cooperate, and put a plan together. Try to involve your brother but if he isn’t able to help, forge ahead on your own.
You don't say Mom has Dementia. Is she up at 5:30 in the morning. If not, why go over?
I agree, you need to be firm and look them in the eye and tell them you are cutting back on your help. Not, I would like...its I am going to.
I had a similar situation with two out of state , very stubborn parents who refused all help, except from me of course. I was the last surviving family member. Dealt with the whole train wreck for 6 years.
Finally moved mom to AL after a bad fall then moved dad in a few days later. It was pure screaming hell for awhile but I stuck to my guns. I couldn’t do it anymore. Was starting to wonder if I’d outlive my folks.
This may sound harsh, but Looking back I was probably better off not having my sibs around. They both had screwed up lives and would have just complicated things.
And if you don’t already have it try to get POA for mom. But she has to be basically competent for this. I had a strong durable POA which helped tremendously.
In the long term your mother will need more care and if the rest of the family can't/won't step up then a move to a more supportive environment may need to take place - brother needs to be made aware that would terminate his cosy living arrangement. BTW, who has POA, please tell me it isn't older brother!
Now, to get to problem-solving. Make a list of all the things you are doing for your mom: housework, shopping, meals, mom's hygiene and toileting needs, all the socialization, and all the administration for appointments. Talk with a home health care agency about what their aides could do for those 35 hours a week to take pressure off of you. Yes, you will be the one who needs to create the plan of care and days/hours the aides will be working with the agency's management. Then, have a family discussion and kindly but firmly tell them that you are unable to provide all the care that mom needs.... and that you have contacted an agency to provide all mom's help and that your (mental and physical) health is starting to suffer. Let all family members know the days/hours the home health care aides will be there and what kinds of tasks they will complete.
For the first week or 2 while health aides are in mom's home, continue to be with your mom while the aides are doing their care - so you can answer questions. Slowly, start "going to do errands" to get mom used to being with the aides without your presence. Eventually, you can probably be there in the morning until aide arrives and leave for day until aide leaves.
1. You keep saying Nursing Home but maybe Assisted Living is a better option. Sounds like your Mom might be a fit there, more activities, more physical and mental opportunities.
2. A facility may still admit your mom if necessary. My mom's AL is admitting already scheduled move ins, that person will be quarantined for 2 weeks. My mom was recently admitted to rehab after a hospital stay so with adequate precautions it can be done.
3. Unfortunately you may have to wait for a serious injury that puts your mom into hospital and takes the choice out of her hands.
4. Is there someone else who can advise your Mom? Pastor, Doctor, friend or relative that has gone through this? Parents often don’t want to take advice from their kids. After Mom's Dr told her she should consider AL she was willing to go look at some options.
So start doing some research now so when the time comes you have a few options selected. Call and talk to the directors about their criteria for admittance. Check out reviews, ask social media for suggestions. I called a Place for Mom (this is not a plug) and got several good recommendations for the area we wanted her to live, as well as ideas on what to look for and questions to ask.
Get brochures and documents from some of the facilities to show your Mom, it's a scary decision to make, especially if she has lived in the same place for a long time. Stress that the places can do the cleaning, laundry, meals, etc. Some have mini-kitchens so she can prepare some of her own food.
Sounds like you can forget any help from your brothers so it’s up to you to make some unpopular decisions for all concerned. If you take them out of the equation and just consider what is best for YOU what would it be? What is the best solution for your mom? What would happen to your mom if you got sick?
BTW we sold Mom's house to pay for AL. It might be time to tell big bro it’s time to look for a new place to live.