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My hubby is 74. I am 60. He has been bedbound for almost 2 years with Parkinson's and has cognitive issues. I could get him into a wheelchair with an invacare lift, but he refuses. It has become too uncomfortable for him. I am his caregiver and fiduciary, & manage all of our expenses and needs. I care for him at home. We've always discussed my outliving him since I am much younger & in good health. I feel I need to have a game plan for the unlikely event I die before him. We have no children. Extended family is extremely unlikely to take him in and care for him. So I have no idea what to plan or how to plan for the event of his outliving me. Who would appoint a guardian for him and a fiduciary for his funds? Would he be a ward of the state? He receives Veterans benefits. Do I call an elder care attorney? An estate planner? A Veterans Administration social worker to look into VA long term care beds? Can anyone guide me? Has any caregiver planned for the same event? All advice helpful.

Yes, consult with an elder care attorney.

He can create a pre-need guardianship document. This names a person as desired guardian in order to avoid a court-appointed one. But he needs to find a person who is willing, able, local, etc.

Otherwise he most likely will end up the ward of a court-appointed guardian. If he is cognitively too impaired to create legal documents, then this will be the probable result.
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Reply to Geaton777
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You will get sound guidance and planning from an elder care lawyer. Hubby can be assured a plan is in place for him
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Reply to Daughterof1930
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I would consult with a Trust and Estate Attorney.
I would speak with family. No, they would be VERY unlikely to take on hands-on care, but they may be willing to act as your hubby's trustee, managing a Trust after the initial Trustee (you, yourself) dies. That would mean they would place him, or would hire an attorney as Fiduciary to manage his care while there are funds.
An attorney can give you the best options.
Good luck.
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Reply to AlvaDeer
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JanPeck123 Oct 30, 2024
Thank you. Called an estate attorney and am doing a paid consult in 2 weeks.
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Of course attorney but perhaps talk to social worker first.
Similar story here, similar ages. My husband has Parkinson’s as well. All arrangements made as there is family etc.
He does not have dementia so can decide for himself although reaching advanced Parkinson’s that could change.
I am more concerned with more likely event if I need hospitalization or I am in car crash. He would need immediate help. One arrangement is if I am hospitalized they would take him as well and do social admit or take him to facility. Another scenario if I am not hospitalized but need time alone or am sick he is pre approved for 28 days of respite stay which could be extended with additional pay.
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Reply to Evamar
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JanPeck123 Oct 30, 2024
Thanks for your suggestions. Who pre-approved you for the Respite? Was that the Veterans Administration?
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