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Who are you caring for?
Which best describes their mobility?
How well are they maintaining their hygiene?
How are they managing their medications?
Does their living environment pose any safety concerns?
Fall risks, spoiled food, or other threats to wellbeing
Are they experiencing any memory loss?
Which best describes your loved one's social life?
Acknowledgment of Disclosures and Authorization
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid. We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour. APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment. You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
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I consent to the collection of my consumer health data.*
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Mostly Independent
Your loved one may not require home care or assisted living services at this time. However, continue to monitor their condition for changes and consider occasional in-home care services for help as needed.
Remember, this assessment is not a substitute for professional advice.
Share a few details and we will match you to trusted home care in your area:
You just tell them that she has decided that quality is more important than quantity and she is on hospice. Then tell them when they can come visit and what they can do to help, if they ask.
You just tell them the truth. I'm guessing it's your father that you have listed under your profile who has cancer, so you tell them that your father has decided against any further treatments for his cancer, and that he has opted for hospice care to keep him comfortable until he passes. If he is at home with you, then you can control who comes to see him and when, and like Isthisrealyreal said, if they ask how they can help, tell them. As you are discovering, hospice does but only a very small potion of your fathers care, so don't hesitate to ask family and friends to help you in any way they can. Please try and make the best of whatever time you have left with your father, and don't leave anything left unsaid. God bless you and your father.
In all situations in my family (aunts, uncles, my mom) we called or emailed and said " X is now in hospice care". It indicated to everyone that the end of life was very near.
If we had signed on to hospice care when mom was first eligible, I would have said "mom is now under hospice care but she is not in immenently dying. She has chosen comfort care over repeated trips to the ER which are distressing and which are not improving her health".
Tell friends and family that you want to keep informed that “Ruth or John” is now on Hospice. You can ask your Hospice if they have a program (actually an app) called TapCloud, there may be others. But family can easily be kept up to date on the condition if you wish that. There is another site called CaringBridge that you can use to keep friends and family up to date.
You are free to share what your elder will allow you to share. I am uncertain what you mean about what to communicate. Most people are well aware of what hospice is. If they are not they can google hospice care. Or you can let them know that your mother's condition now is incurable, and that she has made the decision to decline further care aimed at "cure" and to accept that he life will likely end now, within a certain unknown time frame. Let them know she will receive extra services now, hospital bed if needed, special nurses, aids to assist with activities of daily living, clergy if she wishes, social workers. Tell them she will not be taking medications that are meant to "cure" where there is no cure, but will be kept pain free and free of air hunger. Basically it is "June, Mom isn't going to get better. Her disease has progressed to the point where there cannot be a cure, and where any meds and tests aimed at cure will likely cause her more pain and grief that not. She is going now into "comfort care" so that she can concentrate on being with her family, being kept comfortable." That is sufficient. Encourage people not to say things like "Oh, you CAN get better. Have some Turmeric tea. That cured Aunt Betsy when we all thought she was dying". These things don't help. Let your Mom lead any conversation. Don't deny her words. Tell her you are sorry, that you care for her and ask what you can do to help her now.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
If he is at home with you, then you can control who comes to see him and when, and like Isthisrealyreal said, if they ask how they can help, tell them. As you are discovering, hospice does but only a very small potion of your fathers care, so don't hesitate to ask family and friends to help you in any way they can.
Please try and make the best of whatever time you have left with your father, and don't leave anything left unsaid. God bless you and your father.
If we had signed on to hospice care when mom was first eligible, I would have said "mom is now under hospice care but she is not in immenently dying. She has chosen comfort care over repeated trips to the ER which are distressing and which are not improving her health".
You can ask your Hospice if they have a program (actually an app) called TapCloud, there may be others. But family can easily be kept up to date on the condition if you wish that.
There is another site called CaringBridge that you can use to keep friends and family up to date.