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What do you do when your LO loses all touch with reality?My wife is not there yet but she is very clearly heading in that direction.It has me scared for her as to what is to come.And scared for me as to what I may have to do.

Your wife may lose touch of your "reality" but she won't lose touch of her reality. It will just be different and it will be you that will have to meet her in her new reality and not expect her to join you in yours.
Does it require extra doses of patience? Of course. But it doesn't have to be scary for either of you, as long as you educate yourself about dementia and all it entails.
I always recommend the book The 36 Hour Day as a great place to start along with watching some videos from Teepa Snow(a dementia expert)on YouTube.
And if and when her care gets to be too much for you, don't hesitate to either hire in-home help or look into placing her in a nice memory care.
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Reply to funkygrandma59
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No need to be scared since there are solutions, if you accept them.

1) if she doesn't have a legally assigned PoA this needs to happen immediately. Even if you think she's not cognitively capable, it's the attorney who determins "capacity", and from my personal experience the bar is low: she can have some memory issues and mild dementia and still be able to assign someone. FYI if she assigns you, she should also assign a back-up who is a generation younger than herself.

2) Once she has a PoA then she needs to have a physical by her primary doctor to make sure she isn't having cognitive decline due to another health problem: UTI, diabetes, COPD, high blood pressure, vitamin deficiency, dehydration, stroke, tumor, to name a few. She does not need to go to a neurologist unless her primary thinks she has a treatable neurological issue. She also needs to be seen by her primary in case she needs meds for depression, agitation, anxiety, which comes with dementia. Or she needs any other prescriptions. If she gets a formal diagnosis of dementia, you ask her primary to put this on clinic letterhead and sign it, since you will need this to manage her medical and financial affairs. This is how you activate the PoA authority. If she doesn't assign a PoA then you will need to pursue guardianship through the courts, which onerous, expensive and time-consuming. Or, she will become the ward of a court-assigned legal guardian. Everyone needs to have a legal guardian in order for someone to legally make decisions on that person's behalf. Banks, for starters. Doctors, investments firms, life insurance providers, etc.

3) You review your finances to see if in-home aids or facility care will be affordable should you feel the need for this (and it doesn't matter if she doesn't like it -- the caregiving needs to accommodate the caregiver or else you'll burn out).

4) Educate yourself about dementia, if that's what her ultimate diagnosis is. As suggested by others, Teepa Snow has some very good videos on YouTube and provides strategies for caregivers to help interacting with our demented LOs more productive and peaceful. You can no longer react to your wife as her prior self. That person is leaving. You are now the only one who is flexible and can change.

5) Make sure your own legal ducks are in a row for your own aging and decline since no one gets to stay here forever.

As long as you have a plan that you know you is in place, you can go about life. Come back to this forum when you need more support or suggestions.
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Reply to Geaton777
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Oh, Golly. No one likes that word "reality".
Worse yet is the word "Unpredictablity."
Can you tell us more?
How old is wife and when was she diagnosed?
How old are you?
What modes of education in regard to this disease have you begun? There's a wealth of info online. There are great tapes from Teepa Snow to watch on youtube. There are support groups on Facebook and elsewhere online.

Can you tell us more about you lives, when all this began, and what a day looks like now?
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Reply to AlvaDeer
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