Spouse doesn’t know why he wanders. Says he can’t sleep, has to go to the bathroom, gets hungry. Since he doesn’t remember most of our conversation, there really is no reasoning. I thought I could train him to stay in bed, but it’s just not working. I let him wander so I can get some sleep. He never goes outside and he seems safe enough that he hasn’t fallen or had an accident.
They kept my wandering granny safe in the house, without any disturbance to others.
This article describes a special program provided in Lexington County, SC.
https://www.abccolumbia.com/2024/06/25/project-lifesaver-helps-locate-wandering-loved-ones-with-alzheimers-or-dementia/
If you do not live in Lexington County, SC then here is a link to a website where hopefully you can find the same program near you.
https://projectlifesaver.org/about-us/where-we-are/
Wandering is a major concern for caregivers. Sixty percent of patients with dementia will wander at least once during the course of their illness. No matter how vigilant you are, chances are that in a brief moment when the patient is out of your sight, they will wander off. If you notice their absence immediately, you might be able to find them in a nearby alley or street. However, there is a real chance that you will not and will have to mobilize family, friends, and the police to search for the patient. It may take days to find a missing loved one, and the longer it takes, the greater the risk for the patient.
When Is Wandering Most Likely?
Dementia patients may not remember their name, may forget their home address, and may lose their sense of orientation in familiar places. If the patient is constantly asking about where they are, if they are restless, if they want to go “home” when they are, in fact, home, or if they have trouble finding familiar places like the bathroom and the kitchen, then the probability of wandering off and getting lost is significant.
Ability to Walk
+
Memory Impairment
=
Risk of Wandering and Getting Lost
Wandering is sometimes triggered by a desire to go “home.” Keep in mind that “home” might mean the patient’s current residence, their childhood home, or some other place that looks and feels familiar. Other triggers include forgetfulness, boredom, and loneliness.
Reducing the Risks
To reduce the chances of wandering, ensure that the patient’s needs are being met, their anxiety is under control, and they are in a safe environment. It is, however, essential to plan for their safe return in case they do wander off and get lost.
Meet the Patient’s Basic Needs
· Make sure the patient’s basic needs are met. Are they thirsty or hungry? Are they comfortable? Are they lonely? Do they need to go to the bathroom?
· Try to schedule their fluid intake so they don’t drink anything at least two hours before bedtime. Having to go to the bathroom in the middle of the night can be confusing and may increase the chances of wandering.
· Help the patient deplete their pent-up energy with fun activities. Physical activities are great, but any activity will do, as long as it is done in a safe environment and in your presence.
· Organize daily routines around consistent schedules so the activities and events of the day proceed in a habitual way, reducing the likelihood of the patient wandering off in search of something.
· If the patient feels confused or lonely, stay with them and reassure them. You can say, “We’re safe here,” or “I will stay with you.” Or if they want to go “home,” tell them “We’ll stay here tonight and rest. We will go home tomorrow.”
· If they want to leave the house, do not use force or try to reason with them to change their mind. If you can’t distract the patient, get dressed and go out with them.
· Never leave the patient alone in the car or at home. The risk of wandering off in such cases is significantly higher.
Implement Safety Measures at Home
· Keep the patient’s room, hallways, corridors, and anywhere else they frequent around the house properly lit at all times.
· Equip their bedroom with indirect night lighting. Keep the hallway and bathroom lights on at night, or equip them with motion detectors so when the patient walks nearby the lights turn on.
· The patient may forget the layout of their home or the location of the bathroom, kitchen, or other rooms. Put picture signs on doors to indicate their use. For example, place a picture of a toilet on the bathroom door.
· Lock doors to the outside and remove the keys. If possible, install locks where they will be out o
While this may be good advice for others, anyone with Parkinson's need to take extra precautions against the sun due to a higher risk of melanoma.
https://www.uclahealth.org/news/article/understanding-the-connection-between-parkinsons-disease-pd-and-melanoma
https://pmc.ncbi.nlm.nih.gov/articles/PMC7076116/
And you most certainly shouldn't allow him to wander while you sleep, as he could very well wander outside when you least expect it.
We now in the city I live have a 69 year old man with dementia who wandered outside and has been missing now for 4 days, and our temps have been at night in the 20's. I doubt that he will be found alive.
You need to either place your husband in a memory care facility where he will be taken care of 24/7 and locked in, or you need to hire some full-time in-home help.
What you're allowing is VERY dangerous. Please educate yourself about this horrible disease of dementia so you will be better prepared for what lies ahead.
Sorry you are going through this.
Doc may be able to help with some calming medication, a mild anti-anxiety or anti-depressant and I hope that is the case. If not, only you can decide when things are too much for you to handle at home on your own. He sounds so cooperative and amenable over all. I wish you the very best.