Follow
Share

Spouse doesn’t know why he wanders. Says he can’t sleep, has to go to the bathroom, gets hungry. Since he doesn’t remember most of our conversation, there really is no reasoning. I thought I could train him to stay in bed, but it’s just not working. I let him wander so I can get some sleep. He never goes outside and he seems safe enough that he hasn’t fallen or had an accident.

Find Care & Housing
You probably won't be able to train him out of this behavior. In time, he will be at risk of falling - frequently. You can ask his doctor for medication to help him sleep through the night.
Helpful Answer (0)
Reply to Taarna
Report

Go to the hardware store and see what locks are available. We used a lock that looks similar to a hinge. They are hard for a broken brain to operate and you install them above eye level.

They kept my wandering granny safe in the house, without any disturbance to others.
Helpful Answer (1)
Reply to Isthisrealyreal
Report

Equip the home with interior cameras which will alert you to movement within the space - bedroom, kitchen etc (ie Wyse system) also the ring device with door sensor will be useful for exterior doors. We have both in place and it works well. Best of luck to you. It’s very difficult being a caregiver. Remember one day at a time… you’re doing the best you can. (My FIL was lost for 4 hrs— we were lucky to find him after that we instituted all the cameras and ring alerts).
Helpful Answer (1)
Reply to MarieRiv
Report

Careruf: Perhaps his physician can offer help via medication(s).
Helpful Answer (0)
Reply to Llamalover47
Report

Wandering outside may be the next step. Our local sheriff's office will provide a bracelet to assist caregivers in locating their loved one.

This article describes a special program provided in Lexington County, SC.
https://www.abccolumbia.com/2024/06/25/project-lifesaver-helps-locate-wandering-loved-ones-with-alzheimers-or-dementia/

If you do not live in Lexington County, SC then here is a link to a website where hopefully you can find the same program near you.
https://projectlifesaver.org/about-us/where-we-are/
Helpful Answer (1)
Reply to KPWCSC
Report

You are lucky that he has not had a fall and has not wandered outside and get lost. Here is an excerpt from my book "Dementia Care Companion", about wandering which is available from Amazon at: https://www.amazon.com/dp/B0BFV21P1V  

Wandering is a major concern for caregivers. Sixty percent of patients with dementia will wander at least once during the course of their illness. No matter how vigilant you are, chances are that in a brief moment when the patient is out of your sight, they will wander off. If you notice their absence immediately, you might be able to find them in a nearby alley or street. However, there is a real chance that you will not and will have to mobilize family, friends, and the police to search for the patient. It may take days to find a missing loved one, and the longer it takes, the greater the risk for the patient.
When Is Wandering Most Likely?
Dementia patients may not remember their name, may forget their home address, and may lose their sense of orientation in familiar places. If the patient is constantly asking about where they are, if they are restless, if they want to go “home” when they are, in fact, home, or if they have trouble finding familiar places like the bathroom and the kitchen, then the probability of wandering off and getting lost is significant.

Ability to Walk
+
Memory Impairment
=
Risk of Wandering and Getting Lost


Wandering is sometimes triggered by a desire to go “home.” Keep in mind that “home” might mean the patient’s current residence, their childhood home, or some other place that looks and feels familiar. Other triggers include forgetfulness, boredom, and loneliness.
Reducing the Risks
To reduce the chances of wandering, ensure that the patient’s needs are being met, their anxiety is under control, and they are in a safe environment. It is, however, essential to plan for their safe return in case they do wander off and get lost.

Meet the Patient’s Basic Needs
·        Make sure the patient’s basic needs are met. Are they thirsty or hungry? Are they comfortable? Are they lonely? Do they need to go to the bathroom?
·        Try to schedule their fluid intake so they don’t drink anything at least two hours before bedtime. Having to go to the bathroom in the middle of the night can be confusing and may increase the chances of wandering.
·        Help the patient deplete their pent-up energy with fun activities. Physical activities are great, but any activity will do, as long as it is done in a safe environment and in your presence.
·        Organize daily routines around consistent schedules so the activities and events of the day proceed in a habitual way, reducing the likelihood of the patient wandering off in search of something.
·        If the patient feels confused or lonely, stay with them and reassure them. You can say, “We’re safe here,” or “I will stay with you.” Or if they want to go “home,” tell them “We’ll stay here tonight and rest. We will go home tomorrow.”
·        If they want to leave the house, do not use force or try to reason with them to change their mind. If you can’t distract the patient, get dressed and go out with them.
·        Never leave the patient alone in the car or at home. The risk of wandering off in such cases is significantly higher.

Implement Safety Measures at Home
·        Keep the patient’s room, hallways, corridors, and anywhere else they frequent around the house properly lit at all times.
·        Equip their bedroom with indirect night lighting. Keep the hallway and bathroom lights on at night, or equip them with motion detectors so when the patient walks nearby the lights turn on.
·        The patient may forget the layout of their home or the location of the bathroom, kitchen, or other rooms. Put picture signs on doors to indicate their use. For example, place a picture of a toilet on the bathroom door.
·        Lock doors to the outside and remove the keys. If possible, install locks where they will be out o
Helpful Answer (2)
Reply to Samad1
Report
KPWCSC Jan 16, 2025
Great advice about lighting at night. I started putting an eye mask on my husband at night to help him sleep without being disturbed by the night lights and it seems to help. By the way, I have had to buy several because sometimes during the night he will pull them off and throw them and I find them all sorts of places later.
(0)
Report
Try to keep him awake during the day. Dementia/Alzheimers is called the sundowners disease for a reason,...they become active at night. While I don't recommend sleeping pills (because that's how my mom became afflicted), consider speaking to his doctor and get some sort of sedative to give at night. I also left notes everywhere applicable so she would know where to go and what to do, etc. I printed out signs on the computer (Mom's Room, Bathroom, etc.) and hung then on the doors, and put post it notes here and there so she wouldn't get so confused and agitated. If the sedatives don't work, then leaving out puzzles or the like, picture magazines to look at for him to occupy himself is something that may work. My mom is bedridden now and easier to take care of, but these things I mention here worked for her. P.S. Spending time outdoors where the sun can shine on him will help set the melatonin and serotonin levels in the body and may reduce his agitation at night. Taking a walk outside is simple and beneficial. Make sure NOT to cover his head with a hat so the sun can get to his head. It is ok to wear sunglasses. Sounds hokey, but it helps.
Helpful Answer (2)
Reply to Evonne1954
Report
KPWCSC Jan 16, 2025
"Make sure NOT to cover his head with a hat so the sun can get to his head."

While this may be good advice for others, anyone with Parkinson's need to take extra precautions against the sun due to a higher risk of melanoma.

https://www.uclahealth.org/news/article/understanding-the-connection-between-parkinsons-disease-pd-and-melanoma

https://pmc.ncbi.nlm.nih.gov/articles/PMC7076116/
(1)
Report
Until you have finalized a long term solution, here is my recommendation for short term. We live with my 85 yr old MIL and my husband installed the Ring alarm on every door and window in the house. So far, we’ve only had one incident where at 2am, she tried to throw her soiled undergarment out her bedroom window. That alarm sound is jarring but, it does give us some peace of mind.
Helpful Answer (2)
Reply to Dshapo71
Report

My mother wandered, I slept in the living room where I could see both front and back doors. we put a simple chain lock on the front door out of her reach and a keyed deadbolt on the back door. We also have chihuahua's who would let me know when mom was up. I also have an ADT alarm that sounds when a door is open. You can't stop the wandering and it will be unpredictable. Someone will need to be with him all the time and if you are aging in place, you need to reach out for help as soon as possible for your sake. I got respite care that I could afford for a few hours 2x per week. Could not get mom into a care facility because her income was too high for medicaid and too low to afford the facilities out of pocket.
Helpful Answer (1)
Reply to plcmamamemory
Report

I would be putting key deadbolts on the door. The problem is, they are a fire hazard. My cousin did this but there was someone with my Uncle 24/7.
Helpful Answer (1)
Reply to JoAnn29
Report

The dementia component in your husband's co-disorders is going to be more devastating in the short term than Parkinson's. Put some alarm chimes on the doors for now, just in case.
Helpful Answer (3)
Reply to AliBoBali
Report

He never goes outside until he goes outside. You won’t expect it and will be devastated if he is lost and can’t find his way home. It happens all the time, and the end is tragic. He needs to be in a locked facility now. Please do the right thing before he comes to harm…..PLEASE.
Helpful Answer (9)
Reply to Fawnby
Report

Oh honey, you can't reason with dementia, nor can you train your husband to stay in the bed.
And you most certainly shouldn't allow him to wander while you sleep, as he could very well wander outside when you least expect it.
We now in the city I live have a 69 year old man with dementia who wandered outside and has been missing now for 4 days, and our temps have been at night in the 20's. I doubt that he will be found alive.
You need to either place your husband in a memory care facility where he will be taken care of 24/7 and locked in, or you need to hire some full-time in-home help.
What you're allowing is VERY dangerous. Please educate yourself about this horrible disease of dementia so you will be better prepared for what lies ahead.
Helpful Answer (7)
Reply to funkygrandma59
Report

Do speak with the doctor and get a new neuro-check on him. It sounds the Parkinson's has progressed to a more generalized dementia mix. I think you likely have seen this progressing slowly. Now if this is a sudden change be sure to get a u/a, C&S check to rule out any confusion coming from a bladder infection.
Sorry you are going through this.

Doc may be able to help with some calming medication, a mild anti-anxiety or anti-depressant and I hope that is the case. If not, only you can decide when things are too much for you to handle at home on your own. He sounds so cooperative and amenable over all. I wish you the very best.
Helpful Answer (4)
Reply to AlvaDeer
Report

Ask a Question
Subscribe to
Our Newsletter