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My mother is an early onset Alzheimer’s patient at the end of her life. She was not eating and even choking on water. Hospice came and said her bowel sounds were minimal and her breathing was labored and slow and even suggested she may have 24-48 hours left. The next day she started drinking water and eating again and her vitals were rechecked and they said everything sounds fine now. She is still bedridden and sleeps a lot and jerks her body around. We have no idea what’s to expect as she is not living any quality of life with being unable to even speak. Nobody is able to tell us anything but hospice is still coming daily and seems concerned still even though all of her vitals are fine and she is now eating and drinking when prompted. Someone please help me with some suggestion on what to expect. We can’t take this torture anymore.

This may be a "Rally"
It may not last long.
Check out Hospice Nurse Julie on You Tube.
I am surprised that your Hospice nurse did not mention that rally's can happen.
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Jollincones Mar 29, 2025
Hello! Thank you! They did mention that rally’s can happen but it’s going on 2 days now and I’m just hoping to get insight from as many people as possible for what to expect. What I’m gathering is that nobody knows for sure so we are just along for the ride!
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Jollin,
This seems to be coming down to the end.
In the end you do not want to give food and fluid if swallow is weak or not present due to the fact it will be quickly aspirated into the lungs and cause aspiration pneumonia and quite a quick death.
You will want to test the swallow reflex with a bit of thickened water (a powder called thicket can thicken).
Then, if she can swallow she can eat.
Just don't force things she doesn't want as that prolongs the suffering and the end. Some one here said that every moment of life is precious. This old nurse says, nope. Not always.
Good luck.
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Jollincones Mar 29, 2025
Thank you! I agree that her life and our experiences are precious. However this part of life for her and everyone else involved is farrrr from precious.
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If she is rallying, there is no need for you to sleep on a mattress on the floor next to her. Get up and get out for your own sanity. She'll stop eating and drinking again when she is actively dying.

Don't get me wrong; things are surely not back to whatever your normal has been before hospice was started. But if she is in a care facility, you can sleep in your own bed and check on her frequently. It is unpredictable and I hope you have other family members and friends to give you some support. 15 years is a long time.

I thought I would about lose my mind the last week of the 2 weeks I took care of my brother on hospice alone during Covid. I was desperate and finally hired a night nurse. We only needed him 2 nights. If I had hired a nurse sooner, I could have been more present in his last 48 hours. Your mom is someplace where she is being watched so you need to let them do this for your own sanity. They will call you if something changes rapidly when you step away to sleep or eat. You will be more present at the end if you take care of yourself by getting some sleep.
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Jollincones Mar 29, 2025
Thank you Shirley! I have been stepping away to eat and get short breaks but I would never forgive myself if she passed all by herself at night in her MC facility room. She has given me everything for as long as she was able to and I believe that I can put my life on hold for a
couple weeks to make sure she is as comfortable as possible and feels how loved she is. Not that I don’t agree and appreciate your input that is just where I am in my thinking.
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It maybe rallying. They seem to get a burst of energy and then decline again. My Mom was told my Dad would not live the weekend, he lived 5 weeks. Long enough to have Thanksgiving with his family. He died early the next morning in his sleep.

The human spirit is a funny thing. My Friend just lost her DH. They did not think he'd make it till Thanksgiving. Well, he rallied and spent Thanksgiving in Rehab with his family. Two weeks later he was gone.

The first sign of the body shutting down is they can't swallow. At that point to give her water or food does more harm than good. No one can tell you when a person will pass. The nurses should be able to tell you when she is actively dying. From the time my Mom could not swallow, it was 6 days.
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Jollincones Mar 29, 2025
Thank you Joann. Do you think the fact she couldn’t swallow 2 days ago but now all the sudden can will mean that she may go back to not being able to swallow shortly when the energy burst has passed?
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i have been going through this since last summer. My husband was hospitalized and given two weeks to live. He rallied a bit and he has been up and down since then. You can take it because that, unfortunately, is your new reality. I’m sorry you are going through this but honestly, once I accepted the situation it got much easier to deal with our new reality. Hang in there!
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My dad was eating and drinking until before the day he died. His vitals were good too. He lasted 11 days on hospice whereas Jimmy Carter made it past a year.
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What to expect is the purview of the doctor who ORDERED Hospice. You do not get it without an MD order. As that doctor firstly what the medical diagnosis is and what the prognosis is. As to what to expect, I sadly always say to "expect the unexpected". These things have no neatly folder roadmap to consult. Hospice is your very best consultant to ask on a daily basis what you should expect.

No food and fluids should be forced upon her. She should be allow what she wishes to eat. It does sound as though she may have had a kinked obstruction that straightened itself out if there were no bowel sounds at some point. This can happen.

I am very sorry. These things can go so slowly, but without any food intake at all it should not exceed 30 days unless there are great levels of fat-stores in the body.

Speak with doctor.
Speak with hospice.
They can tell you ever so much more than a group of strangers who don't know Mom, her medical conditions, nor her current state.
We CAN and absolutely do offer you our sympathy and understand how awful it is to have to stand witness to suffering in this manner.
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Jollin , hi, I didn't read what others said , but I just wanted to tell you ,how sorry I am that this is happening to you and your family. I'm sure you have had a long road all ready, and I understand you just want to know the future, the what , the whens. There is no way anyone can know that, hospice , doctors, us, know one but God knows, or the universe, what ever your faith is.

Hang in there, your doing great, this will be over , when it's over, it's all we can really say. 🫂🙂‍↕️💞
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Not to scare you even more, but my late husband was given 48 hours to live back in Dec. 2018, and he ended up living under hospice care for 22 months more until his death in Sept. 2020.
And even when on Aug. 5th 2020, hospice told me that my husband would be dead in 3 days, he lived 41 days until his death on Sept. 14th 2020.
When your mom is in the actual dying process she will no longer want any food or drink even if prompted, so I would just wait for her to turn down both before stopping to offer both.
Only the Good Lord knows the day and time that He will call your mom Home, so for now just enjoy whatever time you may have left with her and make sure that you leave nothing left unsaid.
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Jollincones, I may have misinterpreted the situation. It sounded to me as if your mom was not requesting it but was being prompted or encouraged to eat. I would continue to follow her cues if it were me. I have never heard anyone suggest that food or water be withheld if someone requests it, either on this forum or from any healthcare provider. If she begins to have difficulty choking again, speak to hospice right away for guidance. I’m sorry but I don’t think anyone here can predict life expectancy.
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Jollincones Mar 29, 2025
Yes I may have worded my question wrong. She was unable to eat and drink previously but now she is able to so we are giving her small amount of food and small sips of water. Nobody can give us a definitive timeline for what to expect now. Do you have any thoughts?
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My suggestion on what to expect is that her death will be prolonged as long as she is prompted to eat and drink. If it were me and she is not requesting food/water I would not provide it and would continue to make her as comfortable as possible.

I would also recommend speaking to the hospice nurse further about the dying process. Dehydration is often a natural part but goes against everything we’ve ever learned so it’s difficult to let that piece go. I wish you well—please reach out to the hospice team and perhaps even show them your question here. I also remind people to call the hospice staff whenever you have a concern, there’s a reason they have 24 hour availability.
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Jollincones Mar 28, 2025
I agree but hospice suggests that as long as she is able to eat and drink (which she just started to out of the blue after several days not being able to) we should allow her to do that. I just have a hard time with the thought that we should watch her starve when she is making her signs that she wants food.
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I just noticed you ARE the poster. My original answer still stands.
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Jollincones, w🤯w. The poster said that her mother is at the end of her life, “has no quality of life”, had been “choking on water” even. What to do propose? That you prolong her death and suffering? That her family continue the torment of watching their mother in her deterioration? I don’t know if you are just having a bad day or are a troll but you definitely are rude.
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Jollincones Mar 28, 2025
I’m asking what to expect for life expectancy not how to keep her alive you. I’m sleeping on an air mattress in her facility waiting for her to die right now after supporting and taking care of her for 15 years! 'Im desperately seeking answers from people who have experienced this and you’re driving me further into the ground for your own entertainment. I hope you understand how cruel you’re being right now.
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If I were in her shoes, I would not want anyone to prompt me to eat or drink. I would want my family to just let me go.
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Jollincones Mar 28, 2025
you have clearly never been in her shoes or in my shoes so please keep your unhelpful and unnecessary answers to your self
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