As some of you know, I was the primary caregiver to my 94-year old mother for 10 years during which time her needs exponentially increased while she lived in her apartment. In November, she finally moved to a retirement home in another city, and my sister is now the primary caregiver. I still visit and help as I can although my role has become limited as I live too far away.
I just finished cleaning out Mom’s apartment in December, and handed the keys back two weeks ago. I am exhausted and relieved that this is finally over for me.
The issue is that I have two friends who are trying to make me feel guilty that my life has now gotten easier. I feel as though I just completed a 10-year marathon (during the first 10 years of my retirement, I might add). I was tethered to an aging parent, unable to travel, with a derailed retirement, and the sense that my life was not truly my own.
How do I handle these types of questions: ‘Do you feel guilty?’ ‘Does your sister resent you because she’s doing it all now?’
There was also a statement that bothered me: ‘Don’t feel that you’re off the hook now just because she moved away.’
I don’t know how to effectively deal with any of this.
boundaries - they havent walked in your shoes! and basically haven’t got a clue. I think you should talk to them
Set Boundaries
politely tell them that you find these questions upsetting and it wasn’t an easy decision- 10 years of. Caring has taken its toil on you and you are finding it hard to come to terms as well and Would appreciate it if the conversation on your mother be closed down.
you actually don’t need or have to justify yourself to anyone -
in your heart you know you have done your bit
10 years is an awfully long time to look after someone
if family feel anyway they can take on the responsibility now.
if you feel comfortable explaining your reasons behind your choices then do so-
maybe they are just curious
maybe…
sometimes I do feel guilty - it was the hardest decision I have ever had to make / but I know it is necessary for their well being - I can’t cope anymore
and add I feel a bit overwhelmed when this topic comes up - I’d appreciate it if we could close it down now.
My family have a choice to get involved in the care I’ve given last 10 years but I know she will be looked after and I am mentally and physically too tired to.
id rather not talk about this again - how about we discuss something positive or fun jnstead
or
I know you mean well but im
not comfortable discussing this right now. I hope you can respect that
some times people feel they have a right to have input into your life or just curious tactless talking
either way if you feel uncomfortable tell them and ask the subject not be raised again. Tactlessness questions even if they are just curious.
Them "Don't feel that you're off the hook now just because she moved away"
You "Ohh I don't feel off the hook in anyway, but also it's really not your place to express something like given it's none of your business"
Them "Do you feel guilty"
You "Not in the least just like I don't feel guilty telling you that this is none of your business"
It’s just ignorance, and have caused disunity in the family as they have no idea how much time energy is spent on caregiving!
How you answer those questions is with the truth! Believe me those that question are the very ones who do nothing and love to point fingers! If you do not feel you owe them an answer then say it I don’t owe you any explanation! My mother called that tough Love!
I am so sorry you are having such a difficult time with the care home. It's experiences like yours that give me anxiety. Have you spoken to the director about your concerns of lack of supplies for your Mom? I wish you luck in getting things resolved.
When people move their needy elder in they often stop entertaining at home because their friends don't want to be around that. So they lose touch and it is what it is.
'Off the hook' means the person no longer has to do something and they get choices. Like a fish gets caught on a hook and can't get away. The fish has no choice. The fish's life will be decided by the person with the fishing rod. Ten years is a long time to be in any caregiving situation.
"Do you feel guilty?" Your response, "What an odd question...Why do you ask?"
Does your sister resent you now that she's doing it all? "What in the world would make you ask a question like that?"
And to the "don't feel you are off the hook" person, I would respond with...Deafening silence....If the questioner were to persist, I "might" ask, Please elaborate on exactly what you are getting at.....
Never cease to be amazed as the kind of crass behavior I see exhibited by so-called friends....
I am re-evaluating my friendship with one person in particular. Real friends are supposed to lift one another up.
You have done a Herculean task out of love the last 10 years.
For the questions you get, you can reply "I feel happy that Mom is okay and I have a supportive sister". Or you can just give them a questioning look and ask "why in the world would you think I need to feel guilty?".
The people who are closest to you know your journey with your Mom, and should respect that.
Maybe treat their questions as poorly stated offers of help. By asking... are you really asking if you can help with...?
Maybe treat their questions as poorly stated requests for advice. They may need advice on how to cope with this situation when it is their turn.
No matter what others say, you can t be offended, hurt, made to feel guilty... unless you "own" it. If the statement isn't true, don't own it. Let them know the truth as kindly as possible. Try to change subjects to ones that are more pleasant and don't bring up your mom - especially if the conversation seems to always go down this road. If you find that these friends keep to this vein of conversation, it might be better to distance yourself a bit from them and more spend time with friends who are more encouraging.
You decide to feel as you do.
Your friends will have their opinions and that is what they are - their opinion.
If you decide to take 'in' emotionally and psychological what they say to you, this is your decision. You can reject their 'opinions' and/or comments.
For instance, if a person says xxx, 10 people can hear it 10 different ways ... because it is how the person on the receiving end hears it / takes it in which is up to you.
Furthermore, if my friends talked to me in ways you express you friends talk to you, they wouldn't be my friends anymore. They are not 'friends' -
How to deal with it?
- Listen to your gut.
- Stop being around 'these' kinds of friends (non-supportive)
- To answer their question - which you do not have to do by the way: No, I do not feel guilty.
- Realize that you do not need to defend yourself nor your actions / behavior.
... and you can tell them this: I DO NOT NEED TO DEFEND MYSELF NOR THE DECISIONS I'VE MADE - to anyone.
This is one way to effectively deal with all of this ...
And, evaluate what a 'friend' is and means to you.
I would encourage you to get into therapy to learn to love yourself.
When you love yourself, you do not give your personal power away to others.
There is a saying: "what you think of me is your business." (It / others' opinions about you have nothing to do with you. . . although some feedback could be valuable (you have to decide).
Learn to set boundaries.
I do not want to discuss this.
If you cannot support me in my decision making, do not say anything at all.
Your comments or questioning my decisions is unacceptable (setting a major boundary here ... in essence, you will be telling them to KEEP QUIET - be my friend or leave).
Or you leave. Do not allow yourself to be emotionally beat up. Get up and leave. Or if a phone call. I am hanging up now. Your questions are insensitive, hurtful, and unacceptable. I am exhausted. If you cannot understand this, then you aren't really my friend(s)."
You have to assert yourself. Even if it feels uncomfortable. As another saying goes, "with friends like you, I don't need enemies."
Friends support each other.
They may be totally unaware of how they are relating to you, due to their own lack of self-awareness. Whatever the situation, find new friends. You deserve much better.
If they are so ... ignorant as to not understand what you've already done / been through for the past 10 years ... then ... why would you call them your friends?
You need to develop a back-bone.
You could also figure out what - or how they COULD support you and tell them ... as they may not know. "If you want to support me, this is what I need from you 1. 2. 3.
Could be:
1. Just listen
2. Do not give me advice
3. If you can't be kind and compassionate towards me, then do not say anything at all. (some won't ... and that is a plus for you).
You will be educating them if they are open to hearing you.
They may not be and that is MORE THAN OKAY.
You do not want people in your life that tear you down and do not know how to be supportive.
First, you need to develop a emotional separation between what they say and how you 'take it' in - in other words. Put up an emotional barrier from taking it in (if mean spirited, confrontational, negative). You learn to do this by practicing it. Fumble around and that is fine. This is new behavior for you. They may look at you like a 'deer in the headlights' - they won't know what's up with you. Its called self-love ... self-respect. ... and learning how to set boundaries.
Do not fear losing their friendship. Many people are 'people pleasers' due to not wanting an other person not liking them and possibly rejecting them. This is giving your personal power away ... what matters is that you love yourself.
10 years ... and they don't get. We, here, get it. We've been through it.
Gena / Touch Matters
Everyone post caregiving should be unapologetically selfish.
You deserve it.
‘Do you feel guilty?’ - No
‘Does your sister resent you because she’s doing it all now?’ - I have no idea.
‘Don’t feel that you’re off the hook now just because she moved away.’ - Are you trying to be helpful?
I think 'Mind Your Own Business' is also appropriate. These are all reasonable questions, because some people DO encounter those feelings, but 'friendly inquiries' make it worse.
“ Mom is where she can get a higher level of care by professionals . You have not been in my shoes the last 10 years. Your comments prove that you have little understanding of my situation . “
Then I’d get new friends .
If you can’t handle your friends’ comments, find new friends. Because if they are not supportive, then they are not your friends.
Enjoy your freedom, you deserve it.
For me I really don’t care what anyone thinks. After my part time caregiving slog for my dad is over I will be living out my senior years being selfish. I have paid my dues in spades.
Wishing you freedom and peace.
I hope you find a good social circle and meet an array of healthier people other than these judgmental and false guilt producing people you wrote about.
Please enjoy your retirement and take that trip or cruise that long awaits you. Come here and tell us how much you enjoyed it on aging care so I can live vicariously through you.
I love stories of people who are finally free to live their years in freedom and with peace.
After what I’ve been through during these 10 years with Mom, my bandwidth for guilt-inducing friends is very small. Fortunately, I have other friends who are supportive.
This site helped me when I needed it.
For that reason, I still like to come on here frequently to offer what support I can to caregivers.
I wish us all peace and freedom.
I would use a combination of the replies that others have given, ones that fit your personality and how you talk.
Personally, I would pick the reply about guilt being inappropriate, as you didn't cause your mum to grow old and develop dementia.
I would say, in a tone that shows how disgusted I am by the question, "Excuse me? Did you hear those words come out of your mouth? I can hardly believe that I did."
I would add that I'm sorry my "friend" has such toxic relationships if she thinks resentment is an appropriate response to sisters sharing caregiving duties.
And I would seriously reconsider how much I need such people as friends.
A real friend would celebrate that I finally have my life back.
I am at the point in my life now where I will tell someone--anyone--to mind their business, and to not dare ask me questions like that unless their insistence means they are ready for me to ask some hard questions of my own. So:
Q: Do you feel guilty?
A: I spent 10 years of my life caring for my mom out of love, not obligation--so I have nothing to feel guilty about. Do YOU feel guilty about something? Is that why you're asking?
Q: Does your sister resent you because she’s doing it all now?
A: I never posed such a question to her, because why would she feel that way? Would you like me to call her and ask her if she does, and let her know YOU want to know that?
Q: Don’t feel that you’re off the hook now just because she moved away.
A: Hold that thought. I'm going to go brew some tea. And while I do, you can prepare to answer 1) what you mean by being on or off the hook and 2) why the hell you think you can ask me something so crass, hateful and myopic. Be right back.
Give as good as you get. Alternately, just have a blanket statement ready: "That question is inappropriate and for the sake of our friendship I'm willing to ignore it once. Asking something like that again will communicate you don't care about our friendship OR me, and I will act accordingly and cut ties with you." Full stop, that's it. It says so much they feel it's okay to talk to you like that!
If these questions offended them, oh well. But I think cutting them off is fine too if that’s what you decide.
You want to know how you handle this? By telling them it's none of their business how you feel about it and you see no reason to discuss it.
Were any of these so-called friends helping you with your mother over the last ten years? My guess is they weren't. You don't owe them explanations.
Mom is in a retirement home, how much care is your sister doing? These friends aren't friends. And no, you feel no guilt, you have done your time. Mom is now safe in a Senior home. Your sister has very little care. And you visit and help when you can. Its working for everyone. I had a friend say to me "I took care of my Mom" "Good for you".
I still visit and help as I can. I’m actually quite relieved to be in another city, however, as I’m now too far away to be affected by the gravitational pull of proximity.
Friends who try to make me feel guilty about no longer being the primary caregiver aren’t really friends.