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I have been helping to care for my bedfast MIL for going on 4 years now. We have cared for her in our home for just over 1 year (she was in a facility prior). We have great help, and we work together well as a family. Yet, we see her declining and I know that our caring duties will come to an end at some point. Those of you whose watch has ended, what helped you transition out of caregiving and into a new, post-caregiving routine? Also, both my parents are deceased, so I’ve have experienced that type of grief before. It was super tough for me as an only child, and I don’t want grieve that hard again. So I will miss my MIL, but I will be relieved knowing that she is healed and whole and with the Lord and family members. But this will be the first parent to pass for both my hubby and BIL. How can I be helpful to them?

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Isn't' the old expression "Man plans and God laughs"?
Meaning we really cannot plan for the unknown of the future.

Everyone grieves differently. As someone with the two best parents in the world who was also blessed with the best older bro, I greatly feared the demise of my loved ones. However, as luck would have it I felt little other than great relief that at their ends their suffering was over and I no longer had to stand watch so fearful of further losses for them. Yes, I missed them. But in all truth I still feel them with me, even though many years have gone by and I am myself 82.

So I don't think you can preplan what the grieving may be like. You may find it is a gentle process indeed. And you may not, and you will access help of counselors and support groups as needed at the end.

As to transitioning to care center, consider Hospice and in facility hospice if any are available as they will be a great help. Even getting Hospice into the home now will give you social services help with transfer to in facility if needed.

Wishing you good luck.
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CaringinVA Jan 29, 2025
Thank you Alva🩷 Yes, hospice services are wonderful. We have had them on board for over a year now, couldn’t have done it this well without them.
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I can tell you that no matter how much you "prepare" it will come as a surprise as to how much you were "unprepared" for the feelings and emotions.
How can you be helpful?.....
Be the kind and loving person you have been. Be the generous person that has helped them through the past 4 + years.
Greif has no timeline. It's funny, you look around and the world still goes around, the sun still rises and sets, your heart keeps beating as if nothing has changed yet everything has changed. You, your husband and his brother will carry on then all of a sudden a song will come on, you will make one of mom's recipes and he will cry (or get mopey) and he won't know why. And that could happen a year from now or 7 years from now.

And because it is me...if you do not have Hospice in helping you please make that call.
((hugs))
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CaringinVA Jan 29, 2025
Thank you Grandma🩷 your thoughtful replies and advice to others has helped me greatly over the years. And your response here is full of tender wisdom, I receive it. And Yes, we have had hospice on board for over a year, and they have been a great support.
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Thank you to those who have take a moment to weigh in. Your kind words and advice are most appreciated.
I think my main concern is how to help my family navigate. Like I mentioned earlier, I have walked this road before. I took my own mom’s death pretty hard, because it was sudden. I didn’t get to say goodbye. I feel like caring for my MIL is different, and we are saying goodbye slowly over time. For that reason, I feel I will be ready to move on much quicker than the rest of my family. So, I don’t want to seem insensitive to their needs, but I need to hold space for myself to be relieved and not really sad. Know what I’m saying?
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Daughterof1930 Jan 29, 2025
Makes complete sense. Both my parents had a long, slow decline, remaining alive way after they’d lost so much and were ready to be in heaven. It was definitely a combination of sadness and relief when they died. The sadness was more for what used to be before the health issues, the relief knowing they were free. Something approaching being glad for them, but maybe that’s an emotion others who haven’t walked it don’t get
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With me, I've written down various things that will need to be tended to when my mom passes i.e. memberships to things, getting various things of hers in my name. She has her main papers organized and my name is on both hers and my grandmother's safety deposit boxes so it wouldn't be too hard to find various pieces of paperwork. Luckily, it won't be too big a hassle regarding my grandmother's bank accounts since my mom's plan is to have my name and hers on the accounts.

On many occasions, I would look through the house and decide what collectibles of hers would go and what would stay. I am aware of various family heirlooms and those will stay.

I would be able to do some organizing in and outside the house and it would be the most presentable it's ever been in my life. Visitors wouldn't be limited to just one section of the house.
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CaringinVA Jan 29, 2025
I hear you Bob. Thank you for your thoughts. Especially the last paragraph…I feel the same.
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My mom passed away 9 months ago after living with us the prior 2 1/2 years. I hadn't stopped working (worked at home) so that helped. The hospice offered counseling so I took advantage of that. I also sign up for various events/fun get togethers. (I couldn't get out much while my mom was here) It's still hard at times but she had a long life and her quality of life had gone downhill.
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CaringinVA Jan 29, 2025
My condolences on your mom’s passing, @gnyg58. Thank you for the thought of getting out to events and get togethers.
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Losing my last parent, who was so very ready to leave this world, was a tough time for me. As for preparing, I’m not sure how prepared we really can be, it still somehow feels like a shock despite knowing it’s coming. A couple of things I found good and true for me…..I cleaned out my parent’s belongings pretty quickly in kind of a zoom mode. Taking my time was just making it harder so I powered through. I also found that keeping a bunch of their stuff didn’t heal the wound, it was them I missed and having their things didn’t change that. I kept only what I truly valued. Walking outdoors was and is a huge boost to mood and wellness. Just a change of scenery and a few minutes in nature helps perspective. I started a new job in a field completely unrelated to my degrees or anything I’d done before. Learning something new was a great distraction and a mental challenge that helped. I wish you well in such a tough life transition
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Hothouseflower Jan 28, 2025
We sold my parents' house a few months after my mother died in June. My mother did a trust naming her three daughters as trustees. I was ruthless when it came to saving stuff. I put a lot out in the bulk pick up. Some stuff I posted on NextDoor but really didn't get any hits so that all went in the garbage pile too. I really didn't want their stuff because I have a 725 square foot apartment so I need to be very selective about what goes into the place.

My father doesn't know we sold it. I wasn't sure if I should tell him. It is just another sad reminder of his past life. I don't think it does much good to bring it up.

Neither my sisters nor I were very sentimental about keeping anything. We were ruthless.

I am so glad the house is gone. I worried about the place during my months in California.
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I’m not sure what I will do. But I will be happy not waking up at 3 an anxiety ridden thinking about my father’s latest Medicaid issues or what the NH did or did not do. It will be nice not to have to think about this stuff.

I plan to spend more time with my granddaughters who are 10 and 9. And go on nice extended vacations and not having to coordinate with my sisters.
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CaringinVA Jan 28, 2025
Yes indeed, I hear you, HotHouse, on all that. And I’m sure that your granddaughters are a delight to spend time with!
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