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I have taken her to appointments in the past, and it is about a 20 minute drive. I always ask her if she needs to use the rest room before we get in the car. Sometimes she goes, sometimes she doesn’t. But either way, she always needs to use a bathroom about 5 minutes into the drive. Rather than turn around (and be late for the doctor appointment), I stop at a fast food restaurant to use their restroom. This is not easy, as she uses a walker, is very fragile and has dementia.  I have to find a fast food restaurant fast, as she becomes very agitated. It would help me a lot if I could hear of other people having a similar experience, and how they handle it.

My Mom was self pay for a few months, and she picked a Doctor who was associated with the NH. She had her choice of 3. She was in pretty good health. She had a specialist for her Thyroid but was stable and agreed that the GP could run tests every 6 months to make sure her #s were good.

Now Mom is in a NH, I would re-evaluate her doctors. If she has specialists and she is stable, I may ask if a GP can take over her care seeing the specialist when needed. Or, appts every 6 momths or a year. Moms urologist I dropped because she was passed the 5 yr mark for bladder cancer and she was over 85 yrs old with Dementia. If the cancer returned, we would have done nothing to cure it.

Just like a child, you don't ask Mom if she needs to go, you tell her she needs to go before you leave. You also have her wearca depends.
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Reply to JoAnn29
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I would either have the facility take her in their facility van to her doctors appointments and you can just meet her once she's there, or make sure that she's wearing Depends so you don't have to worry about stopping anywhere.
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Reply to funkygrandma59
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I agree with having her wear a disposable for the appointment. If she resists you can tell her a "therapeutic fib" that the doctor requested she wear one. But this may not deter her from wanting to stop to pee. You again tell her a fib, "Ok, I'm looking for an appropriate place to stop" and then just keep driving to the appointment. If she wants to pee at the doc's office, tell her to wait because they may want to collect urine for a sample analysis (and this may actually be the case).

I think Igloo's advice of paying a staffer to take her to the appointmet *where you will meet her for the hand-off* is a good idea. Especially if you are her PoA, someone who has legal authority needs to be IN the exam room with her at all times. If you are not her PoA then she needs to write you in as her Medical Representative on the HIPAA form you request from the receptionist.

Let us know how it goes!
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Reply to Geaton777
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I am assuming your aunt is a self pay resident and that is why she is going to doctors appointments using her own transportation? If so I would hire a care van with wheelchair lift to ease the stress of getting in and out of the car. It is very difficult for an elderly with limited mobility to pivot to and from the car. Also see if you can accompany her in the van to minimize her stress during transport. If that isn't possible be at the facility to help her in the van and meet her at the doctors office. Insist that she needs to use a wheelchair. When my uncle was self pay it was around $150 round trip.

In regards to her overactive bladder, notify the NH that she has an outside appointment and she will need to wear a brief due to her elevated need to urinate (most likely due to anxiety of the outing and dementia). Follow up with a phone call the night before so it isn't forgotten.
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Reply to AMZebbC
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I would have a friendly chat with the DON Director of nursing to see if there is a staffer (not necessarily a nurse, but a nursing aide or even a dietary assistant) who is either part-time or scheduled off the date of the doctors appointment to accompany y’all from the NH to doctors office and back.

You pay them for their time whatever seems appropriate (ask the DON). It’s a win all around as they get a bit of extra cash, you have extra hands to help (& distract) who knows her & the NH; and Auntie is familiar with them so all kumbaya. Less stressy. I bet they can get Auntie to void before she even leaves the NH as Auntie used to staff asking her to do things and she complies.

Also ask if Auntie should switch to a different panty for doctor visits trips and what brand is best for her type.

& thank you for being there for your Auntie!
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Reply to igloo572
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AMZebbC Mar 20, 2025
While this is "suppose" to be the norm for residents on Mediciad in NYS the staffing shortages are so prevelent that it is rare an aide is available to accompany them. Sadly, this is most likely the case in this situation as well.
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It should be explained now to Mom that you can't always pull in and that many facilities today won't allow use of bathroom for non-paying customers. Tell her that she needs to wear incontinent pantie for car rides. Cover your seat with Chux. Carry extra for trip home.
This is just the realities of life now for you both. She cannot afford a rush call and fall on way to a bathroom, nor do you need to deal with screaming employees.
What works in SF is to sometimes give a 5.00 bill to someone interfering and say "I am a paying customer now". And go about the business of getting into the bathroom.
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Reply to AlvaDeer
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