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Hello everyone, I placed my mother into a local retirement home (24 hour nurse, laundry, room cleaning). It is a one room apartment with a little kitchenette, (mom makes morning coffee and has sweetrolls) and television (the remote drives her crazy sometimes). She's been there almost three years. Her dementia has been a very "slow burn," if you will. In fact I can see signs of it 15-20 years ago. After fracturing three ribs in her house three years ago, I realized it's time. Also I learned she would get lost while driving, (at 93 her doctor had her license revoked after I told her about this). When she stopped driving, she got really angry. She calls me 5-20 times per day to leave angry messages. About a year ago I placed her on "ignore" so I can check her messages when I have energy. I try to call her 2-3 times per day and she's always happy to hear from me. But her angry voicemails include looping - "I need my car", "I need to get out of here", "I need to get back to my house." I tell her to go downstairs and mingle but she says she doesn't want to make new friends at her age. I spoke with her doctor about something for her agitation and he said, "Is it for her or for you?" Meaning, do I want to drug my mother so I won't have to deal with her constant angry messages. I admitted that it would make me happier to see my mother not be so upset. I would really like it if she would just start to relax. She hasn't even moved out of her suitcase - refusing to do it. I'm planning on just doing it for her, but she finds solace in thinking she's on a trip and will be going home sometime. Anyway, any advice on drugs or not would be greatly appreciated, (something that would mimic a glass of wine, which made her quite happy). I had to start giving her non-alcoholic wine due to diarrhea and a "darkness" that would descend on her. Advice on anything would be appreciated! Thank you.

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I’ll just offer a perspective on the phone calls. Awhile ago I put my mom on a silent ringtone. Best thing I did. The number of phone calls from her were getting out of hand and they were usually for something minor. I just remind myself she’s in assisted living and if she needs help, that’s what the staff are for. And if an emergency comes up (and it has) the staff will call me. Phone calls from elderly parents can be stressful on top of everything else we deal with. And unless it’s REALLY necessary, I’d stop calling her so much.
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Reply to DD1963
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Her doctor is an idiot.
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Reply to Bulldog54321
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Her doctor has some nerve asking you if meds would be for mom or you, my God! Is he too dumb to recognize anxiety and agitation in a very elderly dementia patient or what? 😑 Disgraceful.

Get mom a new doctor who's familiar with dementia and who will write a prescription for Ativan or something similar that will help MOM calm down a bit. My mother had good results with Ativan when her dementia had advanced to the point where she insisted I was hiding her parents and siblings in the closets at her Memory Care. She was on a futile quest to find them all the time but the Ativan and max dose Wellbutrin helped.

Also, any doctor that cannot understand OUR stress and anxiety over a situation like this has no business practicing medicine.

Good luck to you.
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Reply to lealonnie1
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MattLA108 Feb 9, 2025
Thank you.
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Sorry if I’m replying twice here… Still learning this site on my phone. Mom‘s angry phone calls start at about 11:20 AM just before she goes down for lunch and then they resume at about 1 PM and can be any time until she’s ready to go to bed at about 7:30 PM.
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Reply to MattLA108
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She's been there 3 years and still fighting it? She needs a better Doctor, to help her with her agitation. Stop calling her 3x a day, for starters. Once in the morning is plenty... to ask her what her plans are for the day.

Mom needs a better doctor who won't brush you (or her) off. She's 96 and knows she won't be around much longer. She is justifiably anxious. Mom needs some form of calming medication, to take the edge off. You should be making that happen, whatever it takes. Keep bringing the non-alcoholic wine, too.

You should take her down to lunch or dinner sometime? Find out about any activities or hobbies she could do? She's probably agitated later in the day and not feeling social at all....just anxious and bored. Sounds like sundowning to me. Tell this to her (hopefully) new doctor.

Mom may need Memory Care, which gives her more personal attention and a higher level of care.
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Reply to Dawn88
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MattLA108 Feb 9, 2025
Thank you for this help. I’m going to get a different doctor for my mother. One who will help with her quality of life.
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Many retirement facilities have their own doctors or nurse practitioners, and you have the option to switch over to them. It’s a good idea because then mom is on their regular rounds and the doctor sees them often, even if he’s there to visit another resident. They get to know each other. Plus mom doesn’t need to leave the facility for her checkups. Mom’s needs for mind meds would be more likely to be addressed with such an arrangement.
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Reply to Fawnby
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That doctor is incompetent. He thinks it's okay to permanently leave an elderly woman in a constant state of agitation?

First thing is to get your mother to see a doctor who has expertise and doesn't brush you and her off. Medications can't restore her memory but they can calm her down.

Second, it sound like your mother needs a memory care facility, where they can provide the higher level of care that she needs.
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Reply to MG8522
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The answer to their question is:
"I would like my mother to see a doctor about her constant anxiety and agitation. I would like to speak to the Doc about her calls to me in terms of distress and frequency. I would like my mother medicated to keep her comfortable and more content".

They are acting as though your request for medical advice is out of order.
It isn't.
I wish you the best of luck.
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Reply to AlvaDeer
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I hope this is a Neurologist your talking to and not her PCP. Agitation is not good for them. You could start off with a low dose. She won't be drugged, but maybe happier.
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Reply to JoAnn29
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Of course the medication is for her, a kindness to help calm the constant anxiety and irritation she’s feeling. It’s hard on an elder or anyone to feel so out of control. And stop even listening to the voicemails, endless negativity like that is bad for the soul. You’re doing the best for mom even though she can no longer see or understand it
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Reply to Daughterof1930
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I wouldn't listen to her voicemails if they upset you. If there is anything going on you need to know, you will hear about it from the facility. Why do you want to unpack her suitcase? It sounds like it could be a trigger for her. Just leave it alone and stop trying to fix things.

Maybe an antidepressant will help your mother.

So sorry you are going through this.
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Reply to Hothouseflower
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I agree with BarbBrooklyn:

The meds are for *her*, for her Sundowning, because she cannot control it and dementia robs her of her ability to bring herself to a place of peace and contentedness. Her current doc is a dope. Seek a new one.

Someone will need to administer meds to her. She will forget, or think she doesn't need them. She may be in danger of overdosing herself if left to her own devices.

Please educate yourself about dementia: what it is, how it changes our LOs and how to better interact with those who have it. It only gets worse for them. Teepa Snow has some helpful videos on YouTube.

Are you her PoA? If not, is anyone?
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Reply to Geaton777
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MattLA108 Feb 8, 2025
Thank you - I’m her POA.
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Welcome, Matt! Your mom sounds unhappy, agitated and possibly depressed.

Has she been seen by a doc who specializes in dementia?

Treating your mom's behavioral symptoms is not "drugging" her. It's replacing chemicals in her brain that aren't being produced any longer. A low dose of an antidepressant may help.

Also, are these angry phone calls at a certain time of day--late afternoon/evening? That's called "sundowning".
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Reply to BarbBrooklyn
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MattLA108 Feb 8, 2025
Thank you for your help! Mom’s phone calls start at about 11:15 in the morning, which is about 15 minutes before she goes down for her lunch. Then they start again at about 1 PM until 7:40 or so. She has a best friend in her life named Ann who is also in her 90s but still lives at her house and Ann and I sometimes get on the phone and talk. She provides help as well and will let me know if mom is in need of anything that I didn’t catch myself. I’ve learned a little about sundowning and learned that if I had her out of her building at night, she got very agitated. I make sure she’s in her apartment feeling safe when the sun goes down.
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