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My mom is 96 with dementia and I want to understand her frustrations and fears so my compassion overrides my frustration

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You can't understand what it is like to have dementia.
My brother had diagnosis of probable early Lewy's Dementia.
We often sat and chatted about what he saw, how he saw the world differently, how real his hallucinations were. He said he greatly feared the loss of mind he knew he was headed into, but was glad to know there were reasons for how he saw the world so differently. He was a marvel at telling me how he saw a scene we were both looking at. He saw a Diego Rivera Flower Market with calla lilies and men with white ballooning linen pants and big sombreros. I saw a van with large white fenders. So there you are.
Welcome to the Forum. Thanks for filling your profile in a bit for us.
Does it make a difference knowing how we saw the world differently?
Not really.
I would read everything the late Oliver Sacks ever wrote.
Start with The Man who Saw his Wife as a Hat.
My brother died before Lewy's could further rob him; for which both he and I were grateful.
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Reply to AlvaDeer
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Put this into your search engine and a number of videos come up.

video showing what Dementia looks like from the perspective of the person suffering from it.
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Reply to JoAnn29
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I'm not sure how this can be achieved since dementia causes chaos in the brain. They lose their short-term memory, inhabitions, abilities of reason and logic, their empathy, their sense of time and space, have bouts of paranoia and can develop aphasia. They can have delusions and hallucinations, and confabulate stories that are usually very dark and negative. This is far different than what it's like to lose one's physical abilities, so not sure how you or I, with all our cognitive abilities still intact, can relate to the demented mind.

Kudos to you for trying to understand your Mom's experience. I learned a lot from watching Teepa Snow videos on YouTube. She is an expert on dementia and caregiving. Some of her videos give great and detailed explanations about what dementia does to a person's mind and why. But she also give strategies to caregivers on how to better interact with our LOs with dementia for more peaceful and productive interactions.
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Reply to Geaton777
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My friend whose wife had Alzheimer's was able to witness first hand what his wife was going through by attending a class through one of his dementia support groups that allowed the participants to put on a virtual reality headset to get a glimpse into the world of someone with dementia. And I know that after that it gave him a whole new perspective and better understanding of this horrible disease of dementia, and what his wife was going through.
The book The 36 Hour Day is also a good resource for you to read.
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Reply to funkygrandma59
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