Hello everyone,
I'm new to this forum and hoping to find some advice from those who may be experiencing similar challenges.
My 90-year-old mother has dementia, affecting her short-term memory, but she remains physically active. She can wash and dress herself, prepare simple meals, and do light housework. Despite being healthy and able to walk a mile, she struggles with grocery shopping and could easily get lost if she didn't follow the same route to the corner store.
My 54-year-old brother, John, has lived with her for about 25 years, and their relationship is co-dependent. Unfortunately, John has never contributed financially to household expenses like groceries or car insurance.
Her specialist has stressed the importance of her attending adult daycare for social interaction and mental stimulation. However, she is strongly resistant to this idea and can become quite angry when John tries to take her. I believe part of her reluctance stems from her fear of losing independence, as she insists that her memory "isn't that bad."
I live about two hours away and do my best to support them by preparing monthly meals, managing doctor appointments, and doing grocery shopping every six weeks. I visit for a few days every six weeks and would like to have my mom stay with me for a couple of weeks but my mother makes excuses as to why she can’t stay with me, primarily focusing on John.
I'm reaching out to this community for advice on how to approach my mother about attending daycare. How can I and John encourage her to go, especially when she strongly refuses? What strategies have worked for you in similar situations? Any insights or personal experiences would be greatly appreciated!
Thank you!Nicole
Maybe turn it around from what expectation she is having? Making it be a new opportunity to get out (in a safe environment)? Maybe calling it something else besides "daycare" which sounds like she is being treated like a child?
Maybe tell her it's a "crafts class" or similar entertainment for seniors? She's in great physical shape for 90, maybe other seniors would like to hear her tips, or how she does it? Maybe ask her to try it out once, and see what she thinks?
My normal 74 year GF attends mosaic classes at the local senior center and loves it. She makes it a priority and has made beautiful art and met some great people.
Worth a shot. With dementia, you may have to use "fiblets."
ABSOLUTELY!!
They offer breakfast, lunch and a snack, have different activities everyday, and even have spa days once a week for those needing a haircut or shower. And you can bring her 5 days a week up to 8 hours per day.
In all honesty she would probably enjoy herself if she would just give it a try.
And some people that I know have had to tell their loved ones that they were going to the daycare to volunteer as they were really needing the help.
And one wife told her husband that he was being hired to work there and at the end of the week, his wife would hand the worker at the daycare a $20 bill when she dropped him off, that they would then give her husband at the end of his week, so he thought that he actually was getting paid. It worked like a charm.
Best wishes in getting your mother to at least give it a try, as I'll bet money that she's love it.
I love this!! <3
Sorry. That's my honest personal opinion.
As to this brother, if he is living with his 90 year old mom and caring for her, watching over her, it is HE who should be paid, and I would advise him to get a good attorney and a care contract done up.
Let this 90 year old woman make the FEW decisions she can still make for herself would be my honest recommendation. Please give her the dignity of at least that.
I think it is cruel to force people into "social interaction" because some silly doctor suggests it. What does he THINK? That if she does this she will live another 100 years. I am sorry, I am ticked off at him, and to be honest I can't IMAGINE anyone listening to him. She said no. To me that is a full sentence with a period after it. Or in my case, an exclamation point!
Senior Center sounds more inviting.
Doctor ordered "socialization" sounds weird and like a science experiment.
Opportunity to make friends sounds more inviting.
Activities for seniors with dementia sounds like busy work.
Classes and activities sounds more like going to the Y.
Change the semantics. Offer to go with her to a session - or ask brother to stay with her for an hour or 2 - and see if she warms up to this opportunity.
I asked the staff how to introduce it and they said it could be described as a volunteer opportunity. In fact one of the people who attended believed he worked there, and would say “it’s shocking what a mess these craft drawers get into each day” and so on. So maybe this is a possibility for your mom? This place also did “make your own ice cream sundae” and cookie making and they had outdoor space and a real 1950s car (no engine) They had an old timey barber shop, diner, etc. to simulate how things were in the 1950/-1960s. I did take my dad for a trial afternoon and told him it was a center where he would be watching a movie and eating pizza (true). I think I also called it “a retirement center.” He also played a trivia game and did better than I would have guessed. But he still said he hated it, my mom would not insist he do it a few times to get used to it. So we dropped it. Good luck dealing with your mom, however it turns out.
I did elder care for many years and often attended adult daycare with some of my care clients when they first started going. Then they're fine on their own. It's kind of like when a kid starts daycare or school. It's a little bit hard at first to be separated from their parent, but then they get into it. You'll see.
Or you can hire a homecare companion a few hours a week to spend time with your mother and to take her out shopping or other places. A paid companion a few hours a week can take her to programs at the local Senior Center if there is one. This will cost less than adult daycare if you hire privately. I had assignments like this where a person was still independent and just needed a bit of socialization. No bathing, incontinence, or back-breaking hands-on work. Just going out to lunch or other places and they were great.
There's choics for your mom. Your brother may have to step up a bit though.
The first day, we took her. As soon as we walked in an aide took her and sat her with a table of other women. My DH was the one who wanted to make sure she was OK. I had to coax him to leave. My thought, its just like taking a child to the first day of nursery school. You give them a kiss, a hug and say you will be back after work and go. When Mom is gone, they are OK. The next day Mom was picked up and dropped off by the DC bus. She told me I had to take her, I said no, the bus will. She ended up having a crush on the driver. He was really nice to her. The picked her up at 8am and brought her back at 3pm. That gave me time to get a shower and then my DH and I did something together. She was set up for Monday, Wednesday and Friday.
Nothing Wrong with using a fiblet.
I wouldn’t push it
I’d probably take her out for a walk to a park or tea shop with you and break her in that way
then you’ll see how she reacts outside
good luck
Make it her idea or one of her friends but certainly not her Dr. She might just go because you don't want her to.
Manipulation works both ways.
You will find a lot of support and resources here.
By way of a bit of my own background, I work in the field of caregiving / care management (providing a multitude of services from hiring caregivers to emptying houses, to working w families dealing with a parent inflicted w dementia - and how to manage overwhelm and exhaustion... and everything in-between. I've studied dementia with one of the country's leading experts, TEEPA SNOW, by way of webinars for almost two years). I encourage you to check out her website.
What I would suggest:
* When a person has dementia, you learn 'not to ask' what they want to do or give them a 'real' choice to be the decision maker. You learn 'how' to talk to them to be in control of the situation. This is learned behavior and takes practice. Dementia - and how and what parts of the brain are affected - is not easy to navigate, even for the best of us. Studying dementia certainly helped me as it provided me a layer of compassion (and patience) between the resistance, anger, fear directed at me.
If I were you/r brother, I wouldn't tell mother where she is going.
If anything, tell her 'we're going to meet new friends of mine.' (or something that will seem okay with her).
- Yes, when she gets there, she'll be frustrated, activated, resistant. With dementia, family/caregivers need to expect this behavior and deal with it accordingly.
- I wouldn't PUSH her. I would set the stage and see how it goes.
While you (meaning you and your brother) may know this already:
- with dementia, you can talk in the moment and then the conversation is forgotten a moment later.
- fear of losing independence is huge (as you mention). Compassion and understanding, along with developing boundaries and how to be in control is essential - and, again, a learning process.
- Do not spend (waste) time explaining anything. For example, instead of saying "let's go to DAY CARE ..." change the words to ... something she will readily want to do, let's go for a walk to get a little exercise ... together.
- As there is a co-dep relationship, your bro may not want to - or know how - to take control and get her to day care. ALTHOUGH, he needs some respite / time off and this could be a carrot on the stick for him - to be able to do something without being 'on' for a few hours.
- He would have to expect the situation to cause some discord / stress - for both of them - is he able to do this? would he want to?
This is important - when dealing with dementia, there is NO SUCH THING AS LYING - you do what you can to keep the person as calm as possible and you tell them whatever will keep them as calm.
* I'd pack a suitcase and you come to pick her up and tell her you're taking her out for lunch.
* Know that she's always resist change and, as you mention, she has a co-dependent relationship with her son, so she'll automatically say "NO" to anything new or different or other.
- I would ask you: Why do you want her to stay with you for a couple of weeks? Is it because you want to be with her (this may appear to be an insensitive question) - however it is important to 'weigh' what you want vs what is in her best interest.
- You could 'trick her' in going with you and see how that goes. After a few hours of 'huffing and puffing, she may - or may not - adjust to being with you. This is something you need to try out to see how it goes.
As dementia progresses, she will dig her heels in more as the fear, confusion, brain chemistry changes will increase. It is a dance-learning to be compassionate while setting boundaries. The needs of care DO need to override the initial frustration or acting out. She doesn't know what is 'good' for her.
- If I were you, I would perhaps try taking her to a day care for an hour or so and you sit there with her, introducing her to others there.
Gena / Touch Matters
And don't call it "Adult Day Care"! No self-respecting adult wants to feel they are being dropped off at day care by their family. Emphasize an opportunity to enjoy a fun social activity.
I'm going to be brutally honest, my husband doesn't like the idea of being around
"people like that". Either he does not see himself as similarly compromised, or he just doesn't want the painful reminder of what he looks like to others.
It is also very uncomfortable for some people to be in a social gathering of strangers. Was your mother outgoing socially before? If she is more of an introvert and home-body, she will hate being dropped off somewhere that she has to interact and put on a friendly face!
Believe me - I am an introvert, and when friends insist that I go out more and do things I have no interest in, I feel uncomfortably coerced.
YOU may like having social interaction and interesting activities daily - don't project that on someone who doesn't share your interests.
Are there other local things to do in the community, such as touring art festivals or exploring downtown boutique shops, or interesting classes that you or your brother can accompany her to? Even hire an older companion aide to take her on outings, and to sit down and play a game or just go to lunch. There are lots of ways your mother could find something more to do. Adult day care is not the only option.
I don't understand the outraged replies. The purpose of these places is to maintain cognition as long as possible so they continue living at home.